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Symonds, Jon; Abbott, David; Dugdale, Daryl – British Journal of Learning Disabilities, 2021
Background: This article reports on the perspectives of fathers with a learning disability in England about being fathers and the support they have received. Although there is an established literature that considers parenting with a learning disability, few studies have focused on the perspectives of fathers. Method: We adopted a qualitative…
Descriptors: Fathers, Parent Attitudes, Parent Role, Learning Disabilities
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Turnpenny, Agnes; Rand, Stacey; Whelton, Beckie; Beadle-Brown, Julie; Babaian, Jacinta – British Journal of Learning Disabilities, 2021
Background: There are a growing number of people with learning disabilities and autism who access personal budgets in the form of direct payments in England. Although they are often involved in decisions about their support, personal budgets are usually managed by someone else, typically a parent. This study examined the experiences of carers who…
Descriptors: Caregivers, Money Management, Budgets, Adults
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Reilly, Deirdre Emer; Raymond, Kathryn; O'Donnell, Chris – British Journal of Learning Disabilities, 2020
Background: Academic research and reports from healthcare professionals tell us people with learning disabilities are not routinely supported to learn about end-of-life issues or make plans for the end of their lives. Materials: Questionnaires were used to check how much people knew. Accessible symbols were used to help people understand…
Descriptors: Intellectual Disability, Death, Self Determination, Access to Information
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Niven, Abigail; Gamman, Lee; Webb, Alison; Goodey, Rebecca; Shankar, Rohit – British Journal of Learning Disabilities, 2020
1.1 Background: In the light of the current national guidance to reduce the number of inpatient learning disability beds, a review was completed of the quality of lives of the people who had been former inpatients in Cornwall at the time of closure of the learning disability inpatient facilities almost 10 years before transforming care. 1.2…
Descriptors: Foreign Countries, Intellectual Disability, Hospitals, Quality of Life
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Robinson, Deborah; Moore, Nicki; Harris, Catherine – British Journal of Learning Disabilities, 2019
This paper presents the findings of an original research project commissioned by BookTrust, a respected UK charity that gifts books to children, young people (CYP) and their families. It explored the impact and modus of pleasurable engagement with books among CYP with severe and profound learning disabilities and applied a critical,…
Descriptors: Instructional Effectiveness, Well Being, Children, Foreign Countries
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Deville, Jane; Davies, Helen; Kane, Ros; Nelson, David; Mansfield, Paul – British Journal of Learning Disabilities, 2019
Background: There are a significant number of adults with a learning disability who live with and are cared for by their parents. There is a pressing need for interventions to support older parent carers with their role and to plan for a time when they can no longer continue caring. This article reports on the experiences of older parent carers…
Descriptors: Parents, Older Adults, Parent Child Relationship, Adults
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Nancarrow, Thomas; Rencher, Joshua; Wilcock, Mike; Bonell, Simon; Wolke, Tony; Shankar, Rohit – British Journal of Learning Disabilities, 2019
Background: Intellectual disability (ID) is associated with polypharmacy particularly off-label psychotropics for "challenging behaviour." NHS England introduced the "stopping over medication of people with a learning disability (LD), autism or both" (STOMP) initiative. As ID services are a professionally diverse group, it is…
Descriptors: Intellectual Disability, Learning Disabilities, Correlation, Drug Therapy
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Deveau, Roy; McGill, Peter – British Journal of Learning Disabilities, 2019
Introduction: Research has shown a positive relationship between practice leadership (frontline management focused upon supporting staff to work better) and better staff experiences of working with people with learning disabilities who may show challenging behaviours. However, little is known regarding the impact of frequency and accessibility of…
Descriptors: Community Services, Learning Disabilities, Administrators, Foreign Countries
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Niven, Abigail; Goodey, Rebecca; Webb, Alison; Shankar, Rohit – British Journal of Learning Disabilities, 2018
Background: The use of psychotropic medication to manage challenging behaviours of people with intellectual disabilities is a contentious issue which NHS England has now focused on. This paper looks to evaluate this within the multidisciplinary context. Method: Records of clients (n = 106) open to a Community Intellectual Disabilities team for…
Descriptors: Drug Therapy, Behavior Problems, Intellectual Disability, Interdisciplinary Approach
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Cluley, Victoria – British Journal of Learning Disabilities, 2018
Background: The term "intellectual disability" is increasingly used to refer to people with learning disabilities in British learning disability policy, practice and research. This change is undoubtedly a reflection of the changing international context. The inclusion of the term "intellectual disability" has been particularly…
Descriptors: Foreign Countries, Learning Disabilities, Intellectual Disability, Definitions
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Roberts, Helen; Ingold, Anne; Liabo, Kristin; Manzotti, Grazia; Reeves, David; Bradby, Hannah – British Journal of Learning Disabilities, 2018
Background: Young people with learning disabilities are frequently underrepresented in research accounts. This study describes the experiences of young people moving from the care system. Methods: We scoped the English and Swedish literature for first-hand accounts and interviewed four young people with learning disabilities leaving the English…
Descriptors: Foreign Countries, Learning Disabilities, Transitional Programs, Literature Reviews
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Head, Annabel; Ellis-Caird, Helen; Rhodes, Louisa; Parkinson, Kathie – British Journal of Learning Disabilities, 2018
Background: People with learning disabilities are moving out of hospitals as part of the Transforming Care programme, although thus far their views on how they have experienced this have not been researched. Materials and Methods: A qualitative design was used to explore how people with learning disabilities experienced moving as part of…
Descriptors: Intellectual Disability, Hospitals, Transitional Programs, Independent Living
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McKenzie, Karen; Whelan, Kathryn J.; Mayer, Claire; McNall, Anne; Noone, Steve; Chaplin, Jill – British Journal of Learning Disabilities, 2018
Background: There is a growing evidence base about the effectiveness of positive behavioural support (PBS) in relation to behaviours that challenge (CB). There is, however, limited research from the perspective of individuals receiving this support. The objective of this qualitative study was to obtain the views of participants with an…
Descriptors: Intellectual Disability, Positive Behavior Supports, Attitudes, Foreign Countries
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Heslop, Pauline; Read, Stuart; Dunwoodie Stirton, Fred – British Journal of Learning Disabilities, 2018
Background: The Equality Act 2010 places a duty on service providers to make "reasonable adjustments" for disabled people. The aim of this study was to explore key aspects relating to the provision of reasonable adjustments for people with learning disabilities in hospitals. Methods: The research questions were explored using Freedom of…
Descriptors: Foreign Countries, Intellectual Disability, Accessibility (for Disabled), Hospitals
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Fish, Rebecca; Hatton, Chris; Chauhan, Umesh – British Journal of Learning Disabilities, 2017
Background: Previous research has found that people with learning disabilities are not given prescription information that is tailored to their needs. We wanted to find out people's information requirements. Materials and Methods: A questionnaire was co-produced by the authors and consultants with learning disabilities. It asked what information…
Descriptors: Foreign Countries, Intellectual Disability, Questionnaires, Physicians
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