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ERIC Number: EJ1262602
Record Type: Journal
Publication Date: 2020-Sep
Pages: 8
Abstractor: As Provided
ISSN: ISSN-1354-4187
Awareness of Bone Health Risks in People with Epilepsy and Intellectual Disability
Sawhney, Indermeet; Zia, Asif; Yazdi, Bahar; Shankar, Rohit
British Journal of Learning Disabilities, v48 n3 p224-231 Sep 2020
Background: People with epilepsy (PWE) have a higher fracture risk than nonepilepsy populations. Antiepileptic drugs (AEDs) cause bone loss. Limited physical activity and poor dietary intake increase fracture risk in PWE. People with an intellectual disability have higher prevalence of epilepsy, likely to be on multiple AEDs, with poorer response, thus at a higher risk of sustaining fractures compared to general population. Ignorance of these issues can add to the risk. The study ascertains bone health knowledge in people with epilepsy and their carers. Materials and Methods: A literature search on intellectual disability, epilepsy, bone health and patient knowledge informed a codesign survey with a service user group. An easy read survey version was created. It was disseminated via NHS Trust clinicians to all service users and their carers receiving services from a specialist learning disability team (catchment population-1,000,000). Results: Thirty-four carers and 23 service users of total 148 eligible (response rate 38.5%) responded to the questionnaires disseminated by clinicians. Approximately 50% of carers and 25% of people with epilepsy had awareness of the increased fracture risk. Less than 25% of the respondents associated AEDs to bone loss. Less than a third were aware of protective strategies to reduce fracture risk. Conclusions: The survey showed significant knowledge shortcomings of both service user and carer groups of relationship between intellectual disability, epilepsy, its medications, fracture risk, and available risk reduction strategies. Clinicians need to be proactive in providing service users and carers with information around bone health and epilepsy.
Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail:; Web site:
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A