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ERIC Number: EJ985369
Record Type: Journal
Publication Date: 2012-Dec
Pages: 10
Abstractor: As Provided
ISSN: ISSN-1354-4187
The Views of People Who Care for Adults with Down's Syndrome and Dementia: A Service Evaluation
Furniss, Kate Atkins; Loverseed, Annie; Lippold, Tessa; Dodd, Karen
British Journal of Learning Disabilities, v40 n4 p318-327 Dec 2012
It is well established that people with Down's syndrome are more likely to develop dementia than other people and that onset of dementia is likely to occur earlier at an earlier age. The article reports on a specialist service for people with Down's syndrome and dementia. The service has offered dementia screening and assessment to people with Down's syndrome for over 10 years and has also developed to offer support and training for carers. Semi-structured interviews were conducted with family carers, relatives and staff about the impact on them of caring for someone with Down's syndrome and how the dementia service supports them in this role. The resulting data were analysed using interpretative phenomenological analysis. The responses provide rich insights into the areas of "knowledge and information", "coping and support" and "concerns about the future". Interviewees also identified services they wanted for the future. As a result of this evaluation, a number of changes have been proposed and begun to be implemented within the service. The results have important implications for other health, social care and voluntary organisations. (Contains 4 tables.)
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: United Kingdom