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Showing 1 to 15 of 430 results Save | Export
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Birri, Nicole L.; Carnahan, Christina R.; Schmidt, Carla; Williamson, Pamela – American Journal on Intellectual and Developmental Disabilities, 2023
Due to the unique social cognitive profiles of individuals with autism spectrum disorder (ASD) with and without intellectual disability (ID) sharing coherent and complex personal narratives can be challenging. To address these challenges research has focused on teaching macrostructure components using visual supports and repeated opportunities to…
Descriptors: Autism Spectrum Disorders, Intellectual Disability, Intervention, Personal Narratives
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Maltman, Nell; DaWalt, Leeann Smith; Hong, Jinkuk; Baker, Mei Wang; Berry-Kravis, Elizabeth M.; Brilliant, Murray H.; Mailick, Marsha – American Journal on Intellectual and Developmental Disabilities, 2023
Variation in the "FMR1" gene may affect aspects of cognition, such as executive function and memory. Environmental factors, such as stress, may also negatively impact cognitive functioning. Participants included 1,053 mothers of children with and without developmental disabilities. Participants completed self-report measures of executive…
Descriptors: Genetics, Cognitive Ability, Executive Function, Memory
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Waite, Jane; Beck, Sarah R.; Powis, Laurie; Oliver, Chris – American Journal on Intellectual and Developmental Disabilities, 2023
In this study, we focus on Rubinstein-Taybi syndrome (RTS) to explore the associations between executive function deficits and repetitive behaviors. Thirty individuals with RTS completed direct assessments of inhibition, working memory and set-shifting. Informants completed repetitive behavior and executive function questionnaires. Repetitive…
Descriptors: Executive Function, Repetition, Behavior Problems, Genetic Disorders
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Soltani, Amanallah; Schworer, Emily K.; Esbensen, Anna J. – American Journal on Intellectual and Developmental Disabilities, 2023
People with Down syndrome (DS) commonly experience challenges with sleep, executive functioning, everyday memory, and symptoms of attention deficit hyperactivity disorder (ADHD). A path analysis was conducted to determine if executive function mediated the relationship between sleep problems and both everyday memory and ADHD symptoms. Parents of…
Descriptors: Down Syndrome, Sleep, Executive Function, Memory
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Zigler, Christina K.; Lucas, Nicole; McFatrich, Molly; Gordon, Kelly L.; Jones, Harrison N.; Berent, Allyson; Panagoulias, Jennifer; Evans, Paula; Reeve, Bryce B. – American Journal on Intellectual and Developmental Disabilities, 2023
Communication deficits have a substantial impact on quality of life for individuals with Angelman syndrome (AS) and their families, but limited qualitative work exists to support the necessary content of measures aiming to assess communication for these individuals. Following best practices for concept elicitation studies, we conducted individual…
Descriptors: Genetic Disorders, Communication Skills, Caregivers, Children
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Zigler, Christina K.; Lin, Li; McFatrich, Molly; Lucas, Nicole; Gordon, Kelly L.; Jones, Harrison N.; Berent, Allyson; Panagoulias, Jennifer; Evans, Paula; Reeve, Bryce B. – American Journal on Intellectual and Developmental Disabilities, 2023
There is a critical need for high-quality clinical outcome assessments to capture the important aspects of communication ability of individuals with Angelman syndrome (AS). To center the perspective of caregivers, our team developed the novel Observer-Reported Communication Ability (ORCA) measure using best practice guidelines, with the goal of…
Descriptors: Genetic Disorders, Test Validity, Observation, Communication Skills
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Meral, Bekir F.; Wehmeyer, Michael L.; Palmer, Susan B.; Ruh, Anil B.; Yilmaz, Engin – American Journal on Intellectual and Developmental Disabilities, 2023
Parenting styles and practices are crucial in promoting the self-determination of children. The purpose of the current study was to investigate the role of parenting styles and practices in enhancing the self-determination of children with/without intellectual and developmental disabilities (IDD). The present study was carried out with a sample of…
Descriptors: Parenting Styles, Self Determination, Children, Intellectual Disability
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McClain, Maryellen Brunson; Schwartz, Sarah E.; Bera, Jac'lyn; Farmer, Ryan L.; Serang, Sarfaraz; Harris, Bryn; Golson, Megan E. – American Journal on Intellectual and Developmental Disabilities, 2023
Measurement of adaptive skills is important in the diagnosis, intervention planning, and progress monitoring of children with intellectual and developmental disabilities (IDD). Thus, ensuring accurate measurement, including measurement invariance, across children with and without IDD is critical. In this study, we evaluate the measurement…
Descriptors: Students with Disabilities, Measurement, Children, Adolescents
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Dembo, Robert S.; Mailick, Marsha R.; Rudolph, Abby E.; Huntington, Nick; DaWalt, Leann Smith; Mitra, Monika – American Journal on Intellectual and Developmental Disabilities, 2023
The present study examined the associations between networks of social relationships and psychological well-being among mothers of adolescents and adults with autism (n = 352) over a 12-year period of time. A structural equation modeling approach was used to delineate the relative impacts of network size and relationship diversity on maternal…
Descriptors: Mothers, Adolescents, Adults, Autism Spectrum Disorders
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von Rotz, Lorna; Courbois, Yannick; Des Portes, Vincent; Lacroix, Agnès; Reymond, Marie-Pierre; Tassé, Marc J.; Touil, Nathalie; Tsao, Raphaele; Straccia, Claudio – American Journal on Intellectual and Developmental Disabilities, 2023
The aim of this study was to develop a transcultural adaptation of the Diagnostic Adaptive Behavior Scale (DABS) in French and to perform a field evaluation of the adapted version of the tool (DABS-F). Eight experts in intellectual and developmental disabilities (IDD) and two professional translators formed two committees to translate the…
Descriptors: Diagnostic Tests, Behavior Rating Scales, French, Intellectual Disability
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Song, Jieun; Dembo, Robert S.; DaWalt, Leann Smith; Ryff, Carol D.; Mailick, Marsha R. – American Journal on Intellectual and Developmental Disabilities, 2023
Developmental disabilities (DD) research has depended on volunteer and clinical samples, with limited racial/ethnic diversity. This study focused on improving diversity and retention in DD research. The sample included 225 parents with a child with DD and 4,002 parents without children with DD from diverse racial/ethnic groups, drawn from Midlife…
Descriptors: Minority Groups, Diversity, Longitudinal Studies, Developmental Disabilities
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Cure, Goksel; Yucesoy-Ozkan, Serife – American Journal on Intellectual and Developmental Disabilities, 2023
The purpose of this study was to compare the relative effects of word reading and story component interventions in developing reading comprehension of narrative texts with four students with mild levels of intellectual disability. A multielement design was used in this study. The findings revealed that the story component intervention was more…
Descriptors: Students with Disabilities, Reading Comprehension, Mild Intellectual Disability, Story Reading
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King, Tracy M.; Parisi, Melissa A. – American Journal on Intellectual and Developmental Disabilities, 2023
As a major funder of research on intellectual and developmental disabilities (IDD), NIH has a broad view of the profound impact of cultural and structural barriers on the characteristics of IDD study populations and the composition of the IDD research workforce. While long overdue, multiple efforts are currently underway across NIH aimed at…
Descriptors: Intellectual Disability, Developmental Disabilities, Research, Diversity
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Kover, Sara T.; Abbeduto, Leonard – American Journal on Intellectual and Developmental Disabilities, 2023
Lack of diversity in IDD research is typically conceptualized only in terms of (1) recruitment of samples that do not appropriately represent the sociodemographics of the population, or (2) the limited number of researchers from historically marginalized backgrounds. Critically, the field also suffers from over-reliance on perspectives and social…
Descriptors: Educational Research, Equal Education, Intellectual Disability, Developmental Disabilities
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Katherine E. McDonald; Ariel E. Schwartz; Micah Fialka Feldman; Tia Nelis; Dora M. Raymaker – American Journal on Intellectual and Developmental Disabilities, 2023
Provoked by decades of grassroots activism, anti-ableist work is underway to advance disability rights. Intellectual disability (ID) researchers can integrate these social changes into their work by interrogating and transforming the beliefs and practices that underpin ID research. We share actionable ideas to foster anti-ableism and allyship in…
Descriptors: Intellectual Disability, Attitudes toward Disabilities, Civil Rights, Social Discrimination
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