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Willems, Melina; Acke, Frederic; Lannon, Beth; Leyssens, Laura; Maes, Leen; Marks, Luc – American Journal on Intellectual and Developmental Disabilities, 2022
Intellectual disability (ID) and hearing loss are frequent comorbid conditions, although otological problems often go unnoticed until picked up by screening. In the hearing program of Special Olympics (SO), athletes with ID are screened for otological problems. By retrospective analysis of all SO meetings between 2007 and 2017, more than 100,000…
Descriptors: Screening Tests, Auditory Tests, Intellectual Disability, Hearing Impairments
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Esbensen, Anna J.; Hoffman, Emily K.; Beebe, Dean W.; Byars, Kelly; Carle, Adam C.; Epstein, Jeffery N.; Johnson, Cynthia – American Journal on Intellectual and Developmental Disabilities, 2022
Parents of 30 school-age children with Down syndrome participated in a small-scale randomized clinical trial of a behavioral sleep treatment designed specifically for children with Down syndrome. The aim was to improve child sleep, child daytime behavior problems, caregiver sleep, and caregiver stress. The intervention spanned 5-8 weeks, and…
Descriptors: Down Syndrome, Sleep, Child Behavior, Stress Variables
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Loveall, Susan J.; Channell, Marie Moore; Burke, Meghan M.; Rodgers, Derek B. – American Journal on Intellectual and Developmental Disabilities, 2022
There is limited available research on the post-high school outcomes of young adults with Down syndrome (DS). The purpose of this study, therefore, was to characterize employment, community-based living, and community engagement outcomes and their correlates among young adults with DS who recently transitioned out of high school. Caregivers (n =…
Descriptors: Down Syndrome, Employment Level, Place of Residence, Community Programs
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Torelli, Jessica N.; Lloyd, Blair P.; Pollack, Marney S. – American Journal on Intellectual and Developmental Disabilities, 2022
To evaluate effects of psychotropic medication for children with disabilities, direct assessments may offer a valuable supplement to caregiver reports. Relative to indirect assessment, direct measures of behavior can increase objectivity and sensitivity, and some have potential to isolate distinct behavioral and learning processes. We conducted a…
Descriptors: Drug Therapy, Children, Disabilities, Evaluation Methods
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Berry-Kravis, Elizabeth – American Journal on Intellectual and Developmental Disabilities, 2022
Fragile X syndrome (FXS), as a monogenic cause of intellectual disability and autism spectrum disorder, has been one of the first neurodevelopmental disorders in which molecular and neuronal mechanisms of disease have been identified, leading to the concept of targeting the underlying disease to reverse symptoms. Translating findings in basic…
Descriptors: Genetic Disorders, Intellectual Disability, Autism, Pervasive Developmental Disorders
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Duis, Jessica – American Journal on Intellectual and Developmental Disabilities, 2022
Angelman syndrome (AS) is a neurogenetic disorder characterized by delays including a severe expressive language delay, motor concerns, ataxia, epilepsy, sleep disturbances, gastrointestinal problems, and characteristic behaviors, including a happy demeanor, hyperactivity, and excitability. The syndrome is one of the first neurodevelopmental…
Descriptors: Neurological Impairments, Genetic Disorders, Expressive Language, Delayed Speech
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Brady, Nancy C. – American Journal on Intellectual and Developmental Disabilities, 2022
This article summarizes research focusing on communication skills of people with intellectual and developmental disabilities (IDD) who communicate primarily without speech, sign language, or augmentative communication. Importantly, developmental theories were emphasized as useful for interpreting communication in children and adults. These studies…
Descriptors: Communication Disorders, Communication Skills, Severe Disabilities, Intellectual Disability
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Thurman, Angela John; Swinehart, Stephanie Summers; Klusek, Jessica; Roberts, Jane E.; Bullard, Lauren; Marzan, Jocelyn Christina B.; Brown, W. Ted; Abbeduto, Leonard – American Journal on Intellectual and Developmental Disabilities, 2022
By adulthood, most males with fragile X syndrome (FXS) require support to navigate day-to-day settings. The present study cross-sectionally: (1) characterized the profile of daily living skills in males with FXS and (2) examined associated participant characteristics (i.e., fragile X mental retardation protein [FMRP] expression, nonverbal…
Descriptors: Genetic Disorders, Daily Living Skills, Males, Adolescents
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Grebe, Stacey C.; Limon, Danica L.; McNeel, Morgan M.; Guzick, Andrew; Peters, Sarika U.; Tan, Wen-Hann; Sadhwani, Anjali; Bacino, Carlos A.; Bird, Lynne M.; Samaco, Rodney C.; Berry, Leandra N.; Goodman, Wayne K.; Schneider, Sophie C.; Storch, Eric A. – American Journal on Intellectual and Developmental Disabilities, 2022
Angelman Syndrome (AS) is a neurodevelopmental disorder most commonly caused by the impaired expression of the maternal "UBE3A" gene on chromosome 15. Though anxiety has been identified as a frequently present characteristic in AS, there are limited studies examining anxiety in this population. Studies of anxiety in other…
Descriptors: Neurological Impairments, Genetic Disorders, Anxiety, Symptoms (Individual Disorders)
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Odom, Samuel L.; Sam, Ann M.; Tomaszewski, Brianne; Cox, Ann W. – American Journal on Intellectual and Developmental Disabilities, 2022
The purpose of this study was to assess the quality of educational programs for school-aged children with autism in the United States. Investigators completed the Autism Program Environment Quality Rating Systems-Preschool/Elementary (APERS-PE) in 60 elementary schools enrolling children with autism. The mean total rating scores were near the…
Descriptors: Educational Quality, Elementary School Students, Autism, Pervasive Developmental Disorders
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Neal, Corinne N.; Brady, Nancy C.; Fleming, Kandace K. – American Journal on Intellectual and Developmental Disabilities, 2022
This study analyzed narratives of male and female adolescents with fragile X syndrome (FXS). The impact of structural language, cognition and autism symptomatology on narrative skills and the association between narratives and literacy were examined. Narratives from 32 adolescents with FXS (24 males, 8 females) were analyzed for macrostructure.…
Descriptors: Adolescents, Genetic Disorders, Gender Differences, Autism
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Rivera-Figueroa, Karla; Marfo, Nana Yaa A.; Eigsti, Inge-Marie – American Journal on Intellectual and Developmental Disabilities, 2022
Parents of children with autism spectrum disorder (ASD) face challenges in accessing diagnostic and treatment services; these challenges vary by race, ethnicity, and culture. This systematic review examines parental perceptions of ASD within Latinx and Black American communities. Findings indicate that interconnections with family and religious…
Descriptors: Parent Attitudes, Autism, Pervasive Developmental Disorders, Barriers
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Rogers, Julie M.; Weaver, Amy L.; Havyer, Rachel D. – American Journal on Intellectual and Developmental Disabilities, 2022
Down syndrome (DS) research is advancing rapidly, yet efforts have raised ethical questions. This mixed methods study describes views of people with DS (self-advocates) and their parents regarding medical interventions for DS. Responses from 35/171 (20.5%) self-advocates and 430/867 (49.6%) parents showed the majority of self-advocates were glad…
Descriptors: Down Syndrome, Intervention, Self Concept, Parent Attitudes
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Crowley, Shannon – American Journal on Intellectual and Developmental Disabilities, 2022
This meta-analytic review investigated interventions for transition-age youth diagnosed with autism, intellectual disability, or extensive support needs. Nineteen group design studies with 215 effect sizes met inclusion criteria. A robust variance estimation procedure that accounts for the clustering effect sizes within studies was used to…
Descriptors: Autism, Pervasive Developmental Disorders, Intellectual Disability, Intervention
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Klusek, Jessica; O'Connor, Shannon L.; Hickey, Alexandra; Hills, Kimberly J.; Abbeduto, Leonard; Roberts, Jane E. – American Journal on Intellectual and Developmental Disabilities, 2022
This study characterized the rates of attention-deficit/hyperactivity disorder (ADHD) in adolescent and young adult males with fragile X syndrome (FXS) using a multi-method approach integrating a DSM-based parent interview (Children's Interview for Psychiatric Syndromes; P-ChIPS, Fristad et al., 1998) and a parent rating scale (Child Behavior…
Descriptors: Attention Deficit Hyperactivity Disorder, Adolescents, Young Adults, Males
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