ERIC Number: EJ973488
Record Type: Journal
Publication Date: 2011
Abstractor: As Provided
Do People with Intellectual Disability Require Special Human Subjects Research Protections? The Interplay of History, Ethics, and Policy
Feudtner, Chris; Brosco, Jeffrey P.
Developmental Disabilities Research Reviews, v17 n1 p52-56 2011
People with intellectual disability (ID) have a long history of discrimination and stigmatization, and a more recent history of pride and self-advocacy. The early history suggests that people with ID are a vulnerable population and deserve special research protections as do some other groups; the disability rights movement of the late 20th century aligns people with ID more closely with the principle of autonomy that has guided clinical and research ethics for the last 40 years. In examining the history of people with ID and the prevailing framework of human subjects research protections in the United States, we conclude that people with ID do not require special protection in human subjects research. The protections that have already been put in place for all individuals, if conscientiously and effectively implemented, achieve the right balance between safeguarding the interest of human research subjects and empowering individuals who choose to do so to participate in research.
Descriptors: Mental Retardation, Self Advocacy, Ethics, Sampling, At Risk Persons, United States History, Research Methodology
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Publication Type: Journal Articles; Reports - Descriptive
Education Level: N/A
Authoring Institution: N/A