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Peer reviewed
Direct linkHuang, Yunhe; Arnold, Samuel R. C.; Foley, Kitty-Rose; Trollor, Julian N. – Journal of Autism and Developmental Disorders, 2022
Pathways to diagnosis in adulthood are poorly understood. Even less is known about undiagnosed adults who believe they may be autistic. This mixed-methods online survey examined adults' journeys from initial concern to receiving the diagnosis. Quantitative findings showed the diagnostic process to be highly heterogeneous. Qualitative analysis…
Descriptors: Adults, Clinical Diagnosis, Autism, Pervasive Developmental Disorders
Luallin, Stephanie; Hulac, David; Pratt, April A. – Psychology in the Schools, 2022
As rates of autism spectrum disorder (ASD) increase, there is an increasing need for clinicians who offer accurate ASD assessments. The Autism Diagnostic Observation Schedule, Second Edition (ADOS-2) is a standardized assessment tool that is commonly recommended for use in comprehensive ASD evaluations. However, practitioners do not always follow…
Descriptors: Autism, Pervasive Developmental Disorders, Clinical Diagnosis, Diagnostic Tests
Fombonne, Eric; Coppola, Leigh; Mastel, Sarah; O'Roak, Brian J. – Journal of Autism and Developmental Disorders, 2022
The SPARK cohort was established to facilitate recruitment in studies of large numbers of participants with autism spectrum disorder (ASD). Online registration requires participants to have received a lifetime professional diagnosis by health or school providers although diagnoses are not independently verified. This study was set to examine the…
Descriptors: Validity, Autism, Pervasive Developmental Disorders, Clinical Diagnosis
Bhavnani, Supriya; Lockwood Estrin, Georgia; Arora, Rashi; Kumar, Divya; Kakra, Minal; Vajaratkar, Vivek; Juneja, Monica; Gulati, Sheffali; Patel, Vikram; Green, Jonathan; Divan, Gauri – Journal of Autism and Developmental Disorders, 2022
Timely recognition of autism in children is integral to improve developmental outcomes. This study used mixed-methods (84 case-registers and 20 in-depth interviews with caregivers of children with a diagnosis of autism) to explore the extent to which the nature of parental concerns and prior knowledge of developmental disorders impact the time…
Descriptors: Barriers, Help Seeking, Clinical Diagnosis, Autism
Bezemer, M. L.; Blijd-Hoogewys, E. M. A.; Meek-Heekelaar, M. – Journal of Autism and Developmental Disorders, 2021
Questionnaires are widely used in autism assessment. However, their psychometric properties are generally not evaluated in clinical practice, and the comparability and applicability of such research is limited because questionnaires are often not simultaneously evaluated. This certainly pertains to predictive values which are highly population and…
Descriptors: Questionnaires, Clinical Diagnosis, Autism, Pervasive Developmental Disorders
Duesenberg, McKinzie D.; Burns, Matthew K. – Psychology in the Schools, 2022
Autism spectrum disorder (ASD) is often diagnosed by clinical practitioners with criteria from the American Psychiatric Association, but an educational diagnosis is usually based on state special education law and is geared towards addressing concerns within schools. The current study aims to examine the extent to which the clinical diagnosis of…
Descriptors: Autism, Pervasive Developmental Disorders, Clinical Diagnosis, Educational Diagnosis
Rosen, Nicole E.; Lord, Catherine; Volkmar, Fred R. – Journal of Autism and Developmental Disorders, 2021
In this paper we review the impact of DSM-III and its successors on the field of autism--both in terms of clinical work and research. We summarize the events leading up to the inclusion of autism as a "new" official diagnostic category in DSM-III, the subsequent revisions of the DSM, and the impact of the official recognition of autism…
Descriptors: Clinical Diagnosis, Autism, Pervasive Developmental Disorders, Medical Research
Lai, Meng-Chuan – Autism: The International Journal of Research and Practice, 2022
The clinical diagnostic process for autism is complex, especially because of the high co-occurrence with other neurodevelopmental and mental health conditions (Gillberg, 2010; Lai et al., 2019). Diagnosis is more complicated in youth and adults than in younger children because life experience and development affect presentation. In particular, it…
Descriptors: Autism, Pervasive Developmental Disorders, Clinical Diagnosis, Comorbidity
Mujeeb Rahman, K. K.; Monica Subashini, M. – Journal of Autism and Developmental Disorders, 2022
Autism spectrum disorder (ASD) is an abnormal condition of brain development characterized by impaired cognitive ability, speech and human interactions, in addition to a set of repetitive and stereotyped patterns of behaviours. Although no cure for autism exists, early medical intervention can improve the associated symptoms and quality of life.…
Descriptors: Screening Tests, Autism, Pervasive Developmental Disorders, Artificial Intelligence
Wagner, Liliana; Weitlauf, Amy S.; Hine, Jeffrey; Corona, Laura L.; Berman, Anna F.; Nicholson, Amy; Allen, William; Black, Michelle; Warren, Zachary – Journal of Autism and Developmental Disorders, 2022
The COVID-19 pandemic has increased the use of telemedicine as an avenue to address the need for diagnostic clarification in young children at risk for autism spectrum disorder (ASD). Although preliminary research has supported the use of telemedicine for identifying ASD in toddlers, little is known about the experiences of practitioners…
Descriptors: Videoconferencing, Computer Mediated Communication, COVID-19, Pandemics
DeMayo, Marilena M.; Pokorski, Izabella; Song, Yun J. C.; Thapa, Rinku; Patel, Shrujna; Ambarchi, Zahava; Soligo, Domenic; Sadeli, Indra; Thomas, Emma E.; Hickie, Ian B.; Guastella, Adam J. – Journal of Autism and Developmental Disorders, 2022
There is an increasing interest in using magnetic resonance imaging (MRI) as a tool for precision medicine in autism spectrum disorder (ASD). This study investigated the feasibility of MRI scanning in a large comprehensive, inclusive and test heavy clinical trial for children (aged 3-12 years) with ASD, without functioning constraints for…
Descriptors: Diagnostic Tests, Brain, Medicine, Autism
Scattoni, Maria Luisa; Micai, Martina; Ciaramella, Antonio; Salvitti, Tommaso; Fulceri, Francesca; Fatta, Laura Maria; Poustka, Luise; Diehm, Robert; Iskrov, Georgi; Stefanov, Rumen; Guillon, Quentin; Rogé, Bernadette; Staines, Anthony; Sweeney, Mary Rose; Boilson, Andrew Martin; Leósdóttir, Thora; Saemundsen, Evald; Moilanen, Irma; Ebeling, Hanna; Yliherva, Anneli; Gissler, Mika; Parviainen, Tarja; Tani, Pekka; Kawa, Rafal; Vicente, Astrid; Rasga, Célia; Budisteanu, Magdalena; Dale, Ian; Povey, Carol; Flores, Noelia; Jenaro, Cristina; Monroy, Maria Luisa; Primo, Patricia García; Charman, Tony; Cramer, Susanne; Warberg, Christine Kloster; Canal-Bedia, Ricardo; Posada, Manuel; Schendel, Diana – Journal of Autism and Developmental Disorders, 2021
Research providing an evidence-base for autistic adult services is sparse. The Autism Spectrum Disorders in the European Union (ASDEU) network implemented an on-line survey to determine gaps in autistic adult diagnostic evaluation and post-diagnostic support services. More than 55% in all groups experienced most of the recommended features for…
Descriptors: Foreign Countries, Autism, Pervasive Developmental Disorders, Adults
van 't Hof, Maarten; Tisseur, Chanel; van Berckelear-Onnes, Ina; van Nieuwenhuyzen, Annemyn; Daniels, Amy M.; Deen, Mathijs; Hoek, Hans W.; Ester, Wietske A. – Autism: The International Journal of Research and Practice, 2021
Between 1990 and 2012, the global mean age at diagnosis of autism spectrum disorder ranged from 38 to 120 months. Measures have since been introduced to reduce the age at autism spectrum disorder diagnosis, but the current global mean age is unknown. This review and meta-analysis report the average age at diagnosis from studies published between…
Descriptors: Age, Autism, Pervasive Developmental Disorders, Clinical Diagnosis
Gardner, Lauren; Campbell, Jonathan M.; Gilchrest, Callie; McClain, Maryellen B.; Shahidullah, Jeffrey D. – Psychology in the Schools, 2022
Providing high-quality services to autistic students and their caregivers requires interprofessional collaboration. This paper highlights the importance of collaboration between clinical and school settings to promote integrated and comprehensive care for autistic students and their caregivers. First, we present how autistic students are…
Descriptors: Identification, Autism, Pervasive Developmental Disorders, Interprofessional Relationship
Atherton, Gray; Edisbury, Emma; Piovesan, Andrea; Cross, Liam – Journal of Autism and Developmental Disorders, 2022
A significant proportion of autistic adults today were not diagnosed until later in life, a group referred to as the 'lost generation,' which may affect mental health. In Study 1 we explored quality of life and autistic trait levels in 420 autistic and TD adults, and in Study 2 we explored the experiences of 8 autistic adults diagnosed as adults.…
Descriptors: Autism, Pervasive Developmental Disorders, Clinical Diagnosis, Age
