Background: Mothers with intellectual disability are less likely than mothers without intellectual disability to breastfeed their infants, but there is little literature that addresses infant-feeding decisions among this population. This study explores experiences of mothers with intellectual disability in making and carrying out infant-feeding…

Background: More people with a learning disability are becoming parents. Little is known about the lived experiences of the children who have a parent with a learning disability. Methods: This study uses interpretative phenomenological analysis (IPA) to understand the lived experiences of people who have a parent with a learning disability. Five…

Background: Little is known about the experience of growing up with a mother with intellectual disability. The aim of this study was to explore this experience from the perspective of adult children. Method: In-depth interviews with 23 adult children brought up by mothers with moderate-to-severe intellectual disability. The interview data were…

People with cognitive difficulties often have scarce economic resources, and parents with cognitive difficulties are no exception. In this article, parents' experiences are put forth and discussed, for example, how does economic hardship affect family life? How do the parents experience support, what kind of strain does the scarce economy put on…

Families with deaf parents and hearing children are often bilingual and bimodal, with both a spoken language and a signed one in regular use among family members. When interviewed, 13 American hearing adults with deaf parents reported widely varying language practices, sign language abilities, and social affiliations with Deaf and Hearing…

Background: Young adults, born to population-representative mothers with intellectual disability (ID), were targeted for psychosocial/life event follow-up. Methods: The whole group originally comprised 42 individuals but 3 had died and 1 had moved abroad. The remaining 38 were approached and 10 consented to participate in an interview study.…

Ten young adults with an intellectual disability whose parents, too, have an intellectual disability were interviewed and completed questionnaires for this exploratory study aimed at charting their experiences of everyday life. Most of the participants reported high life satisfaction, especially with the domains of friends, leisure time, and…

Background: Despite the frequency with which mothers with intellectual disability have their children removed, little theoretical or empirical work has understood the mothers' perspectives on this. A few studies have reported mothers' feelings of grief and loss and their sense of powerlessness in the child protection system. Method: This…

There has been a great deal of attention paid to young carers in recent research, social policy and service provision. In this paper we report on a survey and interview study of 46 young people aged 15 to 18, nine of whom had experience as young carers, to explore the ways in which young people construct the young carer and their disabled parent.…

Background: This longitudinal study of 20 average and bright adults with parents with cognitive difficulties follows a study 20 years earlier of their childhood adaptation to their parents. Method: Semistructured interviews about life situation and changes and perception of family-of-origin. Results: The participants' socioeconomic status changed…

Women are expected to aspire to norms of femininity that include ideal motherhood, where mothers are positioned as ever available, ever nurturing providers of active, involved and expert mothering--indeed, being a caregiver is a master status for adult women in modernity. While this may be the case for all women, mothers who are disabled can have…

To date, there is minimal research focused on the experiences of parents labeled with intellectual disability (ID). Much of the research focuses on early intervention programs and practices to support parents with ID as they raise children from birth to age three. As children age and enter into school there are increasing challenges for navigating…

Using data from in-depth interviews with 20 children, this study finds that children with parents suffering from mental health distress struggle hard to present themselves as "normal" and equal among their peer group. The study shows how they avoid stigma in their presentation of self in everyday life. All the children in this study,…

Background: Given appropriate supports mothers with intellectual disabilities can successfully raise their children. Historically, this support has been provided by extended family members while support from formal services is a recent development. This paper examines the role of extended family members in assisting mothers with intellectual…

Background: Studies support the use of family-centred practices in service delivery to families where a parent has an intellectual disability. This paper examines the importance of such practices to parents. Materials and Methods: Interview responses from 32 parents with intellectual disability were coded by two independent raters as reflecting…