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Direct linkZakirova-Engstrand, Rano; Roll-Pettersson, Lise; Andersson, Kristina; Larsson, Helena; Allodi Westling, Mara; Hirvikoski, Tatja – Journal of Autism and Developmental Disorders, 2023
This initial open feasibility trial reports on feasibility and preliminary effectiveness of the manualized, group-based psychoeducational intervention for grandparents of preschool-aged children with ASD provided by the outpatient habilitation services in Stockholm, Sweden. One hundred and twenty non-custodial grandparents participated in a 6-h…
Descriptors: Foreign Countries, Preschool Children, Autism Spectrum Disorders, Grandparents
Schiller, Vanessa F.; Dorstyn, Diana S.; Taylor, Amanda M. – Journal of Autism and Developmental Disorders, 2021
The protective effects of social support for caregiver mental health are well documented, however the differential impact of support providers (partner, child, family, siblings, friends, professionals) and types (perceived, received) remain unclear. Observational data from 21 independent studies, involving a pooled sample of 2273 parents,…
Descriptors: Social Support Groups, Interpersonal Relationship, Depression (Psychology), Symptoms (Individual Disorders)
Zakirova Engstrand, Rano; Roll-Pettersson, Lise; Westling Allodi, Mara; Hirvikoski, Tatja – Journal of Autism and Developmental Disorders, 2020
Little is known about needs of grandparents of young children with autism in family and community settings. This study investigated perceived needs of grandparents of preschool-aged children diagnosed with ASD in the cultural context of Sweden. Participants were 120 grandparents of children enrolled into autism intervention programs provided by…
Descriptors: Grandparents, Needs, Autism, Pervasive Developmental Disorders
Prendeville, P.; Kinsella, W. – Journal of Autism and Developmental Disorders, 2019
A family systems approach is required to identify the needs of families of children with autism. This paper explores how grandparents support children with autism and their parents using a family systems perspective. A thematic analysis of eighteen semi-structured interviews was conducted with participants from nine families, capturing experiences…
Descriptors: Grandparents, Parent Role, Parent Attitudes, Behavior Problems
Hillman, Jennifer L.; Wentzel, Michele C.; Anderson, Connie M. – Journal of Autism and Developmental Disorders, 2017
Limited information is available regarding the first person perspective of grandparents of children with Autism Spectrum Disorders (ASD). In the present study, 1870 grandparents of a child with ASD participated in a nationwide, online, anonymous, 30-minute survey and responded to open-ended questions including their "greatest challenges and…
Descriptors: Pervasive Developmental Disorders, Autism, Online Surveys, National Surveys
Timberlake, Maria T.; Leutz, Walter N.; Warfield, Marji Erickson; Chiri, Giuseppina – Journal of Autism and Developmental Disorders, 2014
This study investigated families' experience of choice within a participant-directed Medicaid waiver program for young children with autism. Fourteen parents or grandparents participated in in-depth interviews about their experience of choosing personnel, directing in-home services, and managing the $25,000 annual allocation. Key findings…
Descriptors: Health Insurance, Young Children, Autism, Parent Attitudes
Peer reviewedHarris, Sandra L.; And Others – Journal of Autism and Developmental Disorders, 1985
Mothers, fathers, grandmothers, and grandfathers of 19 autistic children completed a questionnaire describing their view of the handicapped child, the impact of the child on the parent, and the relationship between the parents and grandparents. Paired t tests revealed that whenever there was a significant difference between the generations,…
Descriptors: Autism, Family Relationship, Grandparents
