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Guerin, Suzanne; Nicholson, Emma; Keogh, Fiona; Dodd, Philip – International Journal of Developmental Disabilities, 2021
Background: Respite care has traditionally been conceptualised as a short residential break which allows families a break from caring responsibilities. In recent years, alternative respite services have been developed which promote greater social integration and normalisation for people with intellectual and other disabilities. Specific aim: The…
Descriptors: Adults, Intellectual Disability, Family Attitudes, Caregiver Attitudes
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Genik, Lara M.; Aerts, Elisabeth L.; Nauman, Hiba; Barney, Chantel C.; Lewis, Stephen P.; McMurtry, C. Meghan – American Journal on Intellectual and Developmental Disabilities, 2021
Within a parallel-group randomized control trial, pain training's impact on Respite Workers' (RW) care approaches and training evaluations was explored. RW (n = 158) from 14 organizations received pain or control training following randomization. Researchers were blind until randomization; allocations were not shared explicitly with…
Descriptors: Randomized Controlled Trials, Pain, Caregiver Training, Respite Care
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Gadd, Teresa – British Journal of Learning Disabilities, 2020
Background: Respite supports are highly valued by persons with disabilities and their families/carers. In Ireland, there has been regular commentary in relation to a lack of respite services, with users and other stakeholders reporting limited access, inequity of provision, and long waiting lists for support. Materials and Methods: Much of the…
Descriptors: Respite Care, Intellectual Disability, Adults, Foreign Countries
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Petts, Louisa; Urmston, Elsa – Research in Dance Education, 2022
Community dance has been used as an arts-based approach in healthcare, key for expression in populations who may not typically have access to dance. This study sought to conduct an empirical exploration of family caregivers' perceived psychosocial wellbeing when regularly participating in community dance classes. Community dance can be defined as…
Descriptors: Dance Education, Dementia, Community Programs, Well Being
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Genik, Lara M.; Aerts, Elisabeth L.; Barata, Paula C.; Barney, Chantel C.; Lewis, Stephen P.; Newby-Clark, Ian; McMurtry, C. Meghan – American Journal on Intellectual and Developmental Disabilities, 2021
This parallel group randomized controlled trial tested effectiveness of the Let's Talk About Pain training on respite workers' (RW) pain-related knowledge and feasibility-confidence-skill ratings using between-group and within-group analyses. Fourteen children's respite organizations were randomized to pain or control training. Participants…
Descriptors: Randomized Controlled Trials, Program Effectiveness, Pain, Training
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Rogge, Nicky; Janssen, Juliette – Journal of Autism and Developmental Disorders, 2019
Autism is associated with a range of costs. This paper reviews the literature on estimating the economic costs of autism spectrum disorder (ASD). More or less 50 papers covering multiple countries (US, UK, Australia, Canada, Sweden, the Netherlands, etc.) were analysed. Six types of costs are discussed in depth: (i) medical and healthcare service…
Descriptors: Autism, Pervasive Developmental Disorders, Costs, Health Care Costs
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Habayeb, Serene; Al-Harahsheh, Sanaa; Ratto, Allison; Verbalis, Alyssa; Pugliese, Cara; Nadwodny, Nicole; Al-Meer, Feras; El-Akoum, Maha – Autism: The International Journal of Research and Practice, 2022
Autism services in Qatar are expanding rapidly, but focus predominantly on young children. The shortage of qualified autism providers and minimal opportunities for autistic youth to participate in school, work, and community have led to a growing population of autistic youth transitioning to adulthood with substantial unmet needs for behavioral…
Descriptors: Foreign Countries, Autism, Pervasive Developmental Disorders, Respite Care
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Spruin, Elizabeth; Abbott, Nicola; Holt, Nicole – International Journal of Disability, Development and Education, 2018
Globally, families who care for a child or adolescent with disabilities have been found to experience high levels of maternal ill health, stress, depression and family breakdown. In extreme cases, children and adolescents may have to move away from their family to a permanent residential placement. A potentially more appropriate and cost-effective…
Descriptors: Family Programs, Respite Care, Questionnaires, Semi Structured Interviews
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Nicholson, Emma; Guerin, Suzanne; Keogh, Fiona; Dodd, Philip – British Journal of Learning Disabilities, 2019
Background: Respite care is an essential support for people with intellectual disabilities and their families; however, there is limited evidence examining different models of respite care. The present research examined quality of life among adults with intellectual disabilities using three different models of respite services in Ireland. Method:…
Descriptors: Foreign Countries, Mild Intellectual Disability, Moderate Intellectual Disability, Residential Care
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Dyches, Tina Taylor; Christensen, Ruthann; Harper, James M.; Mandleco, Barbara; Roper, Susanne Olsen – Journal of Autism and Developmental Disorders, 2016
Single mothers of children with autism spectrum disorders are rarely studied, yet they may experience unique stressors. Researchers asked 122 single mothers to complete questionnaires concerning respite care, daily hassles/uplifts, depression, and caregiver burden. More than half (59.8%) accessed respite care, which was provided for 1h per day,…
Descriptors: One Parent Family, Mothers, Children, Autism
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Norton, Michelle; Dyches, Tina Taylor; Harper, James M.; Roper, Susanne Olsen; Caldarella, Paul – Journal of Autism and Developmental Disorders, 2016
Parents of children with disabilities are at risk for high stress and low marital quality; therefore, this study surveyed couples (n = 112) of children with Down syndrome (n = 120), assessing whether respite hours, stress, and uplifts were related to marital quality. Structural equation modeling indicated that respite hours were negatively related…
Descriptors: Stress Variables, Marital Satisfaction, Down Syndrome, Structural Equation Models
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Hussain, Rafat; Janicki, Matthew P.; Knox, Marie; Wark, Stuart; Parmenter, Trevor – Journal of Intellectual & Developmental Disability, 2019
Aims: Life expectancy for both sexes in Australia exceeds 80 years, with individuals with intellectual disability also increasingly living into older age. This research aimed to comparatively examine perceptions of staff supporting either older adults or age peers with lifelong intellectual disability. Methods: This project asked 420 medical,…
Descriptors: Older Adults, Intellectual Disability, Health Personnel, Health Services
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Southby, Kris – Journal of Intellectual Disabilities, 2017
Respite aims to alleviate the stress and burden of caring for someone with an intellectual disability and/or autism. Respite can take place in a number of different ways, but most commonly occurs in a residential setting. Based on survey and interview data with carers (CAs), service users and stakeholders (STs) in a northern city in England, this…
Descriptors: Foreign Countries, Respite Care, Barriers, Caring
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Pretorius, Chrisma; Steadman, Jacqui – Child Care in Practice, 2018
Family members of children with disabilities have become more involved in their children's care and have adopted the role of primary caregiver. Due to the varying degrees of the condition, children with cerebral palsy (CP) often require greater involvement from their caregivers. Fifteen caregivers for children with CP residing in rural communities…
Descriptors: Child Rearing, Rural Areas, Cerebral Palsy, Foreign Countries
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Hodgetts, Sandra; Zwaigenbaum, Lonnie; Nicholas, David – Autism: The International Journal of Research and Practice, 2015
Purpose: Increasing demand for autism services is straining service systems. Tailoring services to best meet families' needs could improve their quality of life and decrease burden on the system. We explored overall, best, and worst met service needs, and predictors of those needs, for families of children with autism spectrum disorders. Methods:…
Descriptors: Autism, Pervasive Developmental Disorders, Children, Needs Assessment
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