Family navigator programs are becoming increasingly common among families of children with autism. Yet, it is unclear how family navigators are developed; by exploring the input of families of children with autism, such programs can be responsive to family needs. In this study, 12 parents of autistic children from low-resourced communities were…

There exists a huge chasm between child care options available to families whose children are typically developing and those whose children have identified disabilities or developmental delays. The intersecting identities of race, disability status, and socioeconomic status compound to make the current child care options inadequate to meet the…

Background and Aims: Self-determination related skills are central for achieving a life of quality for people with intellectual disability and develop as the person interacts with his/her contexts, such as home. As such, families are crucial agents in supporting the self-determination of their children with intellectual disability, although to…

This article presents findings from research focusing on parent/carer views of support received for school non-attendance. Research has consistently demonstrated poor short-term and long-term outcomes for children who experience school non-attendance and there is growing concern in the UK, and across the world, for children who miss education.…

Background: Persons with profound intellectual and multiple disabilities (PIMD) increasingly outlive their parents. Therefore, we designed a structured group conversation to support family members and care professionals in exploring together how parental roles may be taken over by others when necessary. Method: We conducted a mixed methods study,…

Community schools have shown promising gains for students in the areas of student attendance, academic achievement, student behavior, and school climate. However, little scholarship has addressed the experiences of these schools and their stakeholders during the COVID-19 pandemic. To determine how community school programs were impacted by the…

Background: Moving out of the family home is a key transition for people with intellectual disabilities and their families. Yet there has been little research about parents' experiences of planning the move of their young adult offspring to residential settings offering 24-hour support. Method: Interviews were conducted with eleven parents whose…

Inclusion is central to work in early intervention and early childhood special education (EI/ECSE) and reflected in the core beliefs and recommended practices of the field (Division for Early Childhood [DEC], 2014). Inclusion, according to the joint statement of the DEC and the National Association for the Education of Young Children (2009), means…

Background: Natural supports are widely used by adults with intellectual and developmental disabilities. However, little research has been conducted on this topic. This study adds to the literature by examining the role of parents as natural supporters, other members of the natural support network, challenges families face as they secure natural…

Understanding service providers ' perceptions of family-centred care (FCC) is essential to improve the processes and outcomes of children's services in early intervention. A systematic review and meta-analysis of the research on the Measure of Processes of Care-Service Provider (MPOC-SP) were performed to determine the extent service-providers of…

Provision of early childhood education and care services for refugee families took on heightened challenges during COVID-19 restrictions. We undertook a small-scale study to explore how Australian educators worked with and cared for refugee families during the COVID-19 outbreak in an urban Australian setting. This paper emerges from a larger…

Research is growing on the ways K-12 schools can address immigration policy and assist in mediating its impact on students and families. Community schools are poised to address these issues through integrated student supports by taking an asset-based perspective that views community members and organizations as powerful constituents in the…

Throughout the history of higher education in the United States, parents and family members of college students have often found themselves as obsolete to the postsecondary experience. Minimal research has been dedicated to understanding the experience of parents and family members of college students until the millennial generation began their…

Background: The Child Development Advisor (CDA) (Portage) service provides developmental support to children with significant developmental delays and emotional support for their families through fortnightly home visits. However, the onset of the COVID-19 pandemic and subsequent restrictions imposed to control its spread prevented services from…

Background: The provision of unscheduled healthcare for children with intellectual disability is less researched than that focused on hospital settings or for adult services. The aim of the scoping review was to map the evidence base in this area and identify areas for future study. Method: A five-stage scoping review framework was adopted.…