ERIC Number: EJ1300564
Record Type: Journal
Publication Date: 2021-Jul
Pages: 13
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1362-3613
EISSN: N/A
Exploring the Health of Families with a Child with Autism
Smith, Sarah L.; McQuade, Hannah B.
Autism: The International Journal of Research and Practice, v25 n5 p1203-1215 Jul 2021
Families provide a critical context for the overall growth and development of a child. The health of a family is foundational to the everyday life in which a child and family can flourish. For families raising a child with autism, the chronic, intense nature of everyday life affects family health in part due to increased parental stress and potential centralization of the child with autism in family functioning. The present study sought to understand how families of children with autism perceived and experienced their own family health and to identify what factors and processes families identified as contributing to their health. Researchers conducted semi-structured interviews with 16 families with a child with autism ages 2-17. Interviews occurred in person and with all members present to the extent possible based on parental and child choice. Sixteen mothers, eight fathers, and 32 children (18 with autism) participated. Interviews were about the family as a unit and conducted in a casual dialogue style. Interviews were audiorecorded and transcribed verbatim. Researchers analyzed data using inductive content analyses to generate results. Findings suggest families experience family health as a journey grounded within family identity and marked by five themes: connection, balance, the centralization of autism, stress, and support systems. Findings contribute relevant considerations for service providers working to support children with autism and their families.
Descriptors: Autism, Pervasive Developmental Disorders, Family (Sociological Unit), Health, Family Environment, Stress Variables, Children, Adolescents, Family Relationship, Social Support Groups, Interpersonal Communication, Family Needs, Activities, Stress Management
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Publication Type: Journal Articles; Reports - Research; Tests/Questionnaires
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A

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