Heath advocacy (HA) remains a difficult competency to train and assess, in part because practicing physicians and learners carry uncertainty about what HA means and we are missing patients' perspectives about the role HA plays in their care. Visual methods are useful tools for exploring nebulous topics in health professions education; using these…

Siblings of children with a severe illness diagnosis experience childhood differently than their same-age peers. The purpose of this study was to explore and describe an adult's understanding of their childhood experiences when their sibling was diagnosed with a severe illness. In prior studies, researchers engaged proxies, such as parents, to…

Exercise science career readiness requires skills to implement therapeutic exercise with chronic disease patients. This study sought to expose students to experiential scenarios working directly with older adults. Q methodology, designed to scientifically explore viewpoints, along with the Q sort data collection was used to determine and describe…

Limited attention has been devoted in school psychology training programs to students with chronic health conditions. School psychologists are situated to provide behavioral and mental health services to students with chronic health conditions. The focus of this report is on pediatric chronic pain. Pediatric chronic pain is prevalent and can be…

Succeeding at university can be a complex matter, and the barriers are manifold for students with disabilities (SwDs). Accommodations are available for those with needs, but these alone do not meet the political goals of inclusive educations. Student ambassadors act as experienced representatives on campuses, supporting others and gaining…

Background: The main goal of a health system is to maintain or improve people's health. The COVID-19 pandemic showed the fragility of health systems worldwide. In Mexico, the pandemic affected the performance of the health system, along with the presence of contextual conditions such as its segmentation and high prevalence of chronic diseases.…

Background: Disparities in school attendance exist for children with medical complexity (CMC) due to COVID-19. Longitudinal changes in family-reported school safety perceptions and predictors of full-time, in-person school attendance are unknown. Methods: This was a prospective, longitudinal cohort study with 3 survey waves (June 2021-June 2022)…

Students with chronic and complex medical conditions often require assistive technologies in order to accommodate both physical and cognitive needs. Survivors of childhood cancer who are eligible for special education offer a lens through which to examine barriers to assistive technology assessment, acquisition, use, and support for students with…

Background: Significant advances in the treatment of Cystic Fibrosis (CF) have extended life expectancy, increasing the number of CF caregivers who deliver demanding daily treatment regimens and manage uncertainty. With the impact these changes have on CF caregivers, it is critical to understand CF caregiver quality of life (QoL). Purpose: To…

Inclusive education is a recognized right. One of the factors addressed the least by the scholarly literature is the right to inclusive education among students with chronic diseases. Given the scarcity of research on this topic, the goal of this study is to identify and analyse how the research published has addressed the inclusion of students…

Objective: This cross-sectional study examined correlations between physical activity and anthropometrics as well as sleep quality and anthropometrics. Participants College students (n = 85) with average age 25.6 ± 5.4 years. Methods Participants received full-body dual-energy x-ray absorptiometry scans and completed validated surveys: Habitual…

Young people in physical isolation because of significant illness experience disconnection from social and educational contexts. A ground-breaking intervention in New Zealand aimed to foster social inclusion for young people who are hospital-or-home-bound due to cancer treatment. A formative assessment of five young people aged 13-18, their…

Chronically ill students have been excluded from many conversations about access in higher education. These students have conditions that impact their daily lives and can carry stigma with them, which in turn can impact their academic performance. Additionally, chronically ill students have largely been excluded from the literature in higher…

Advance care planning (ACP) can assist patients and their families in navigating personal and medical choices at the end-of-life; however, these conversations often transpire too late. Primary care providers (PCPs) frequently develop extended relationships with their patients, especially those with chronic disease, and possess opportunities…

Purpose: Americans with rheumatoid arthritis (RA) represent an emerging vocational rehabilitation (VR) clientele. Method: Following an overview of the etiology, incidence, prevalence, and impact of RA, the authors present strategies to meet the service and support needs of Americans with RA across the phases of the VR process. Results: The…