I presented the 2019 Hans O. Mauksch address at the American Sociological Association annual meeting in New York City on August 13, 2019. In this address, I explore how sociology faculty perceive their physical bodies in relationship to teaching. After reviewing the literature, I surveyed a national sample of sociology faculty from diverse…

The NIEHS-sponsored "Appalachian Health & Well-Being Community Forum" held in Eastern Kentucky brought various community members together to communicate and establish better coordination of efforts to improve health and address regional environmental issues. The 2-hour forum discussion provided bi-directional feedback about the needs…

There is a growing literature that seeks to explore what is 'sensitive' about 'sensitive' research. In order to problematise and interrogate the concept of what may or may not be considered 'sensitive' research, this paper draws on four related projects exploring sex, intimacy and relationships for young people, over 16 years, who have…

Purpose: Children suffering from cancer or cardiovascular disease, who need extended periods of treatment in hospitals, are subjected to multiple hardships apart from the physical implications, for example, experienced isolation and disrupted social and academic development. This has negative effects long after the child's recovery from the…

Aberrant interoceptive accuracy could contribute to the co-occurrence of anxiety and premonitory urge in chronic tic disorders (CTD). If it can be manipulated through intervention, it would offer a transdiagnostic treatment target for tics and anxiety. Interoceptive accuracy was first assessed consistent with previous protocols and then…

Background: Parents of children with profound intellectual and multiple disabilities (PIMD) have extensive care duties. This study describes the phenomenon "parenting a child with PIMD." Method: We conducted in-depth interviews with 25 Dutch parents. A reflective lifeworld research was used. Findings: The essential meaning of the…

Sickle Cell Disease (SCD) is an inherited blood disorder affecting approximately 1 in every 365 African American births. Students with SCD are likely to experience ongoing complications that will interfere with their attendance, functioning at school, and overall daily functioning throughout their lives. This article provides education about SCD…

BME HealthReach is an educational outreach program where undergraduate BME students participate in an out-of-class design thinking course to create and teach interactive STEM activities to K-12 students, where children with chronic illnesses are the primary clients. We detail research that seeks to answer the following: (1) what impact does this…

Evaluations that include stakeholders aim to understand their perspectives and to ensure that their views are represented. This article offers a new approach to gaining stakeholder perspectives through crowdsourcing. We recruited a sample of individuals with chronic low back pain through a crowdsourcing site. This sample coded textual data…

Background: University wellness education can have a long-term impact on the health-related knowledge and behaviors of individuals. Moreover, individual perceptions influence the likelihood of participation in health-promoting behaviors. Therefore, understanding college students' health-related priorities and perceptions may increase the…

The Suicide Screening Tool for Chronic Illness assesses suicide risk for persons with chronic, "invisible" illnesses. From an initial pool of 31 items, internal consistency, Rasch, and exploratory and confirmatory factor analyses produced a 14-item scale that is unidimensional, internally consistent, and correlated with measures of…

Fibromyalgia Syndrome (FMS) is a chronic pain syndrome that often coexists with common musculoskeletal pain, sleep disorders, bowel syndrome, mood disorders, and fatigue. Although the aetiology of FMS pain has not been elucidated yet, psychotherapy methods are used in addition to physical methods to treat these pains. This study aims to examine…

Background: In this study, we aimed to determine how school attendance changed over time for children on Medicaid with chronic health conditions enrolled in a comprehensive care coordination program called Coordinated HEalthcare for Complex Kids (CHECK). Methods: Medicaid beneficiaries from one managed care organization were randomized into 2…

Objectives: Certain heart conditions and diseases are common in Down syndrome (DS; trisomy 21), but their role in early onset dementia that is prevalent in older adults with DS has not been evaluated. To address this knowledge gap, we conducted a study of risk factors for low neurocognitive/behavioral scores obtained with a published dementia test…

This record of study applies a qualitative research design to explain the phenomenon of parent advocacy in school systems for parents whose children suffer from a specific illness known as chronic recurrent multifocal osteomyelitis. This study seeks to explain frustrations experienced by parents during their work as the key communicators between…