Students diagnosed with sickle cell disease (SCD) are eligible for special education services and benefit from advances in medical research that have extended the life expectancy of this population; however, there is a dearth of research on medical professionals' and PK-12 educators' awareness epistemological beliefs about pediatric sickle cell…

Purpose: The purpose of this study is to calculate gender and socioeconomic status (SES) inequalities in chronic obstructive pulmonary disease (COPD) in Greater Glasgow and Clyde and measure the proportion of inequalities explained by smoking. Design/methodology/approach: Medical records until May 2016 were linked to mortality data to measure COPD…

Background: Demand for formal social services support for adults with intellectual disabilities is increasing internationally. Initiatives which empower individuals with intellectual disabilities to improve their health, develop living skills or manage chronic illnesses may promote independence and reduce unnecessary dependency on social services.…

This brief describes the working paper, "Connecting the Brain to the Rest of the Body: Early Childhood Development and Lifelong Health Are Deeply Intertwined." The working paper examines examines how developing biological systems in the body interact with each other and adapt to the contexts in which a child is developing--for better or…

Background: The free water protocol (FWP) is an alternate management strategy for patients with dysphagia, who would otherwise be nil by mouth or prescribed thickened fluids, allowing them to drink and potentially aspirate water under strict guidelines to minimize the risk of adverse consequences. The FWP is not widely implemented in acute…

Background: Chronic care management (CCM) and community health worker (CHW) interventions hold promise for managing complex chronic conditions such as diabetes and related comorbidities. This qualitative study examines facilitators and barriers to the implementation of an expanded CCM intervention that explicitly incorporated program staff, clinic…

Through effective communication and proper accommodations, adolescents with chronic illnesses can have their physical, cognitive, social, and emotional needs met at school.

It is well established that positive youth development (PYD) programs improve adolescent psycho-social wellbeing; however, it remains unclear if PYD programs developed for able-bodied adolescents can be implemented with adolescents with disabilities in low-resource settings. We conducted a pragmatic trial of an evidence-based PYD program…

This article offers recommendations for online graduate students, instructors, and universities to better meet the needs of students with disabilities who increasingly participate in online courses. Using semi-structured interviews, researchers asked what recommendations participants from respective disability categories have for supporting them…

Introduction: The burden of non-communicable diseases (NCDs) is a major challenge for countries, regardless of their level of development. Social branding is an emerging approach to health promotion for NCD prevention. In this paper, the process of social branding is documented as a case study to help researchers develop similar kinds of…

There is an increased belief in the benefits of information and communication technologies (ICT) in healthcare, but the perceived benefits of ICT in family caregiver support need to be explored. This qualitative interview study aimed to describe how family caregivers and healthcare staff in COPD care experience ICT. The results showed that both…

Purpose: This study aims to understand the eHealth literacy skills of chronic patients and to explore the relations, patterns between eHealth literacy skills and different factors such as demographics, search strategies and health information sources and to explain their effects on eHealth literacy in Turkey in Izmir in COVID-19 outbreak.…

t(TskBL) is a simulated learning approach in which the focus for students is a real task done by a medical professional. TskBL includes standardized patient encounters and is helpful to provide early clinical exposure. Our study aimed at planning, implementing, and assessing TskBL among first-year medical students and comparing it to the…

Phenylketonuria (PKU) is a rare, but serious, metabolic disease that can cause a variety of neurological, psychological, and academic complications. Fortunately, many individuals with PKU who are identified and treated early can go on to live a relatively normal life. However, PKU does continue to present with a variety of complex underlying…

Portrait therapy entails an art therapist co-creating portraits of patients diagnosed with life-limiting illnesses and exhibiting it in a museum art gallery. A description of portrait therapy practice draws on the portraits, collages, and prose poems of two patients, along with feedback from exhibition visitors and patients' families. For…