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Peer reviewed
Direct linkDurán-Pacheco, Gonzalo; Silkey, Mariabeth; Johnson, Michelle; Liu, Chuang; Clinch, Susanne; Law, Kiely; Loss, Georg – Journal of Autism and Developmental Disorders, 2023
To better understand the impact of children's autism spectrum disorder (ASD) severity on families, we evaluated pathways through which ASD severity affected child sleep quality, caregiver strain, and caregiver sleep quality. In a cross-sectional analysis through the U.S.-wide Simons Foundation Powering Autism Research for Knowledge (SPARK) cohort.…
Descriptors: Autism Spectrum Disorders, Children, Adolescents, Severity (of Disability)
Mbadugha, Chisom Joy; Ogbonnaya, Ngozi Phoebe; Iheanacho, Peace Njideka; Omotola, Ngozi Joy; Ogbonna, Pleasure Nwakaego; Anetekhai, Chinenye Juliet – Qualitative Research Journal, 2023
Purpose: Schizophrenia, a chronic mental disorder, poses enormous threat to the individual, family and society. The advent of deinstitutionalization of the mentally ill transferred the burden of care to families especially close relatives. Few studies have described the families' subjective views in this context. Hence, this study aimed to explore…
Descriptors: Foreign Countries, Caregivers, Coping, Schizophrenia
Elmlinger, Steven L.; Schwade, Jennifer A.; Vollmer, Laura; Goldstein, Michael H. – Developmental Science, 2023
Infants' prelinguistic vocalizations reliably organize vocal turn-taking with social partners, creating opportunities for learning to produce the sound patterns of the ambient language. This social feedback loop supporting early vocal learning is well-documented, but its developmental origins have yet to be addressed. When do infants learn that…
Descriptors: Feedback (Response), Social Influences, Language Acquisition, Infants
Boeije, Hennie; Leemrijse, Chantal; Zonneveld, Ellen; Schelven, Femke – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Family carers of people with an intellectual disability sometimes need to transfer their caregiving tasks for example because of illness or ageing. We examined carers' experiences with long-term care planning and the impact of the COVID-19 pandemic on their intentions to engage in long-term planning in the Netherlands. Method:…
Descriptors: Caregivers, Family (Sociological Unit), Intellectual Disability, Health Services
Santos, Telmo; Steinway, Caren; Mastrogiannis, Ariana; Chen, Jack; Woodward, Jason; Riddle, Ilka; Spicer, Brittany; Berens, John; Davis, Thomas; Cornacchia, Michelle; Wright, Charmaine; Lindquist, Lee A.; Jan, Sophia – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Long-term care planning (LTCP) is critical for individuals with intellectual/developmental disabilities. Objectives of this study were to investigate progression through LTCP, and associations between social support and: (1) LTCP and (2) burden among family caregivers. Methods: A cross-sectional survey was distributed to caregivers of…
Descriptors: Caregivers, Long Range Planning, Health Services, Social Support Groups
Doodeman, Tanja W. M.; Schuengel, Carlo; Sterkenburg, Paula S. – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Sensitive responsiveness is an important aspect in affect-regulation of people with severe to profound intellectual disabilities. Aim: This randomized controlled trial evaluated the Attune & Stimulate-checklist, a tool for detecting subtle and idiosyncratic communicative behaviours and responding adequately. Methods: Effects on the…
Descriptors: Severe Intellectual Disability, Interpersonal Communication, Responses, Caregivers
Sturgeon, Michaela – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Mindfulness interventions have been shown to ameliorate stress in support staff working with people with intellectual disabilities. This review aimed to explore what impact mindfulness interventions for staff have on their care and support behaviours, and on the experiences of people with intellectual disabilities receiving support.…
Descriptors: Metacognition, Intervention, Intellectual Disability, Stress Variables
Raval, Vaishali V. – Child Development Perspectives, 2023
As in other fields of developmental science, emotion socialization research in Asia, where nearly 60% of the world's population lives, has emerged on the margins. Contextualizing this marginalization within colonial foundations of our science, in this article, I discuss the historic dominance of the Global North frameworks of emotion…
Descriptors: Emotional Development, Socialization, Cultural Influences, Decolonization
Burke, Meghan M.; Lee, Chung eun; Hall, Sarah A.; Rossetti, Zach – Intellectual and Developmental Disabilities, 2019
Many siblings anticipate fulfilling caregiving roles for their brothers and sisters with intellectual and developmental disabilities (IDD). Given these roles and the importance of supported decision making, it is crucial to understand how individuals with IDD and their siblings make decisions. Using dyadic interviews, we examined the perspectives…
Descriptors: Decision Making, Intellectual Disability, Developmental Disabilities, Siblings
Sonia Islam Nisha; Fariea Bakul – International Journal of Developmental Disabilities, 2024
Background and Aims: The coronavirus pandemic (CP) leading to prolonged lockdown, and restriction of movement for almost two years in Bangladesh severely affected not only the well-being (physical and mental health) of both children and adults but also their access to home-based learning. The present study aimed to explore the mental, and physical…
Descriptors: Parents, Caregivers, Caregiver Attitudes, Parent Attitudes
Leclerc, Marie-Josée; Morin, Diane – Journal of Applied Research in Intellectual Disabilities, 2022
Background: For adults with intellectual disabilities living in a residential care facility, support staff, who are an integral part of their daily lives, can play an important role in supporting their sexuality. Even though multiple programmes exist, barriers remain when it comes to their application. This study aimed to identify factors…
Descriptors: Adults, Intellectual Disability, Residential Care, Employees
Micai, Martina; Ciaramella, Antonio; Salvitti, Tommaso; Fulceri, Francesca; Fatta, Laura Maria; Poustka, Luise; Diehm, Robert; Iskrov, Georgi; Stefanov, Rumen; Guillon, Quentin; Rogé, Bernadette; Staines, Anthony; Sweeney, Mary Rose; Boilson, Andrew Martin; Leósdóttir, Thora; Saemundsen, Evald; Moilanen, Irma; Ebeling, Hanna; Yliherva, Anneli; Gissler, Mika; Parviainen, Tarja; Tani, Pekka; Kawa, Rafal; Vicente, Astrid; Rasga, Célia; Budisteanu, Magdalena; Dale, Ian; Povey, Carol; Flores, Noelia; Jenaro, Cristina; Monroy, Maria Luisa; Primo, Patricia García; Charman, Tony; Cramer, Susanne; Warberg, Christine Kloster; Canal-Bedia, Ricardo; Posada, Manuel; Scattoni, Maria Luisa; Schendel, Diana – Journal of Autism and Developmental Disorders, 2022
The Autism Spectrum Disorders in the European Union (ASDEU) survey investigated local services' use experiences of autistic adults, carers and professionals with interventions for autistic adults. The majority of the 697 participants experienced recommended considerations prior to deciding on intervention and during the intervention plan and…
Descriptors: Intervention, Autism, Pervasive Developmental Disorders, Adults
Presnell, Jade; Keesler, John M.; Thomas-Giyer, Jen – Intellectual and Developmental Disabilities, 2022
People with intellectual and developmental disabilities (IDD) are disproportionately impacted by potentially traumatic experiences; however, organizations serving this population have lagged in their integration of trauma-informed care (TIC). Trauma-informed care is a systemwide response to the pervasiveness of trauma that frequently requires an…
Descriptors: Intellectual Disability, Developmental Disabilities, Trauma Informed Approach, Trauma
Kerns, Connor M.; Lankenau, Stephen; Shattuck, Paul T.; Robins, Diana L.; Newschaffer, Craig J.; Berkowitz, Steven J. – Autism: The International Journal of Research and Practice, 2022
The stressors autistic individuals encounter and experience as traumatic may vary from non-autistics. We conducted a qualitative study to identify potential sources of trauma for autistic individuals and evaluate correspondence with a standard measure. We enrolled autistic adults (N = 14) and caregivers (N= 15) with varied adversities, levels of…
Descriptors: Adults, Autism Spectrum Disorders, Caregivers, Trauma
Download full textJacqueline Huscroft-D'Angelo; Alexandra Trout; Sara Bharwani; Ashley Brown; Cassandra Dittmer – Grantee Submission, 2022
For foster care involved children and youth, the primary goal is placement permanency into safe, supportive, and stable home environments. Although schools play an integral role in permanency planning and success during this transition, little is known about educator perspectives regarding education related transition planning and student needs.…
Descriptors: School Personnel, Attitudes, Student Needs, Foster Care
