Objectives: Autism spectrum disorder (ASD) has a major impact on caregivers. We aimed to describe caregivers' perceptions concerning their level of knowledge about ASD and their needs to better adapt education and training programs. Methods: This was a descriptive cross-sectional study conducted through a declarative and self-administered survey…

Children with Autism Spectrum Disorder (ASD) who have Complex Communication Needs (CCN) benefit from Augmentative and Alternative Communication (AAC) to support communication. Research on the use of AAC and how different stakeholders perceive the use of AAC has been heavily focused on Western culture. The purpose of this study was to understand…

The purpose of this study was to provide an in-depth understanding of the challenges Ugandan parents of children with autism face. Caring for a child with autism poses unique challenges to families and deserves tailor-made remedies. Autism is understudied in Uganda and Africa. This qualitative study reports on results from focus group discussions…

Introduction: As little is known about who uses specialty mental health clinics for persons with intellectual disabilities, this study aimed to identified caregiver concerns, clinical characteristics, and the relationship between these two constructs for referrals to such a clinic. Methods: Qualitative and quantitative analyses were applied to…

Background: Across the life course, women and girls with learning disabilities and their carers report difficulties in accessing information and support with menstruation, yet their experiences are often overlooked in initiatives to improve menstrual health and wellbeing. Our aim was to collaborate with women with learning disabilities to…

The purpose of this qualitative study was to explore caregiver experiences at a community elementary school in suburban Wisconsin. The community school strategy aims to ensure all students flourish in thriving school communities, establishing partnerships among school staff, caregivers, and the community (Community Schools Forward, 2023). Given…

For caregivers of people living with major neurocognitive disorders (MNCD), adapting and applying methods optimizing learning (MOL) to a specific situation, based on preserved cognitive skills, can be challenging. This study aimed to 1) co-develop workshops, a web application and accompanying materials to support the operationalization of MOL; 2)…

Caring for individuals with autism spectrum disorder (ASD) can be complicated, especially when challenging behaviors are present. Providers may feel unprepared to work with these individuals because specialized training for medical and social service providers is limited. To increase access to specialized training, we modified an effective…

Aim: To determine whether short-phase Occupational Performance Coaching combined with service navigation support is feasible for families waiting for autism assessment. Method: A pilot feasibility study was conducted using a blinded randomization procedure that allocated participants to one of three trial arms: (1) face-to-face coaching, (2)…

The purpose of this qualitative research study was to explore the experiences of caregivers who advocate for a child with social anxiety. Parents of a child diagnosed with social anxiety describe similar experiences and challenges. Often parents adopt the role of advocate in order to obtain the necessary school services for their child. This…

The purpose of this qualitative phenomenology design was to describe the experiences of caregivers to adults with I/DD in the State of Texas. The theory guiding this study was the social constructivism framework which focused on how language and culture frame how individuals communicate, experience, and understand reality. In this study, the…

Background: This study reports the findings from a Dutch study, exploring care workers' knowledge and perceptions of the online lives of adolescents with mild or borderline intellectual disabilities. Method: Using an inductive research design 33 semi-structured interviews were conducted with care workers. Results: Three themes were derived from…

Background: Child and Youth Care is a challenging field characterized by intensive daily involvement with youth at risk. It belongs to the wider area of helping professions but has its distinct attributes related to clients' characteristics and working environment. Objective: This study explores how Child and Youth Care workers in Israel…

The benefits afforded to young children through shared reading are well-documented, but few studies have focused on what contributes to enjoyment of shared reading, especially as it pertains to caregivers' enjoyment. This study explored child and caregiver enjoyment of shared reading through an online survey. Caregivers named books their 0- to…

Objective: The purpose of this paper was to examine variables associated with food insecurity among community college caregivers during the COVID-19 pandemic. Methods: We used data from a multi-institutional survey of 15,051 caregivers enrolled at 130 community colleges in 42 states in fall 2020. We used a logistic regression to examine whether…