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ERIC Number: EJ927840
Record Type: Journal
Publication Date: 2011-Mar
Pages: 10
Abstractor: As Provided
ISSN: ISSN-1354-4187
"How Long Are We Able to Go on?" Issues Faced by Older Family Caregivers of Adults with Disabilities
Dillenburger, Karola; McKerr, Lyn
British Journal of Learning Disabilities, v39 n1 p29-38 Mar 2011
Research-informed policy and practice is needed for older caregivers of adult sons/daughters with disabilities. These caregivers are often under tremendous stress because of failing health, financial pressures, bereavement and worry about the future of their sons/daughters. Twenty-nine older parents/caregivers of 27 adults with intellectual and/or developmental disabilities were interviewed to explore their views and experiences regarding long-term care and service arrangements, health and psychological needs and "future planning". Findings show a severe lack of support, respite care and future planning which causes high stress levels for caregivers. Policy makers and researchers working in this field need to take into consideration the needs of older caregivers when making future plans for adults with disabilities.
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: Researchers; Policymakers
Language: English
Sponsor: N/A
Authoring Institution: N/A