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Direct linkArcher, Sally K.; Garrod, Rachel; Hart, Nicholas; Miller, Simon – International Journal of Language & Communication Disorders, 2013
Background: Duchenne muscular dystrophy (DMD) leads to progressive muscular weakness and death, most typically from respiratory complications. Dysphagia is common in DMD; however, the most appropriate swallowing assessments have not been universally agreed and the symptoms of dysphagia remain under-reported. Aims: To investigate symptoms of…
Descriptors: Physical Disabilities, Neurological Impairments, Genetic Disorders, Symptoms (Individual Disorders)
Abbott, David; Carpenter, John – Child Care in Practice, 2015
Duchenne muscular dystrophy (DMD) is an inherited, progressive and life-limiting neuromuscular disease that affects boys. During their lives, they experience a series of medical and surgical interventions. Research reported in this paper took place in England with 37 young men living with DMD and their families and explored their experiences of…
Descriptors: Neurological Impairments, Males, Foreign Countries, Barriers
Peer reviewedReid, Denise T.; Renwick, Rebecca M. – International Journal of Rehabilitation Research, 1994
A new questionnaire instrument, the Life Satisfaction Index for Adolescents (LSIA), has been developed for adolescents with Duchenne muscular dystrophy (DMD). This article reviews the conceptual basis of the LSIA, its development, and its reliability and validity (established with 15 male adolescents with DMD). (DB)
Descriptors: Adolescents, Attitudes, Life Satisfaction, Males
