ERIC Number: EJ1168588
Record Type: Journal
Publication Date: 2018-Mar
Abstractor: As Provided
The Quality of Life of Children with Severe Developmental Disabilities
Ncube, B. L.; Perry, A.; Weiss, J. A.
Journal of Intellectual Disability Research, v62 n3 p237-244 Mar 2018
Background: Research examining the quality of life (QoL) of children with severe developmental disabilities (SDD) is limited. The present study examines parent perceptions of child QoL in children with SDD compared with typically developing (TD) children and then examines predictors of QoL for the SDD group. Method: Parents of 246 children with SDD (aged 4 to 19 years) and 210 TD children (aged 4 to 18 years) responded to an online survey. QoL was measured using a composite variable composed of the child's happiness, achievement of potential and friendship quality. Results: Children with DD had lower QoL ratings than TD children. In children with DD, higher QoL was related to younger age, higher adaptive skills, lower maladaptive behaviour, lower parent psychological distress and higher satisfaction with the child's education. Conclusions: Interventions to promote positive outcomes for children with SDD should target both characteristics of the individual and the environment.
Descriptors: Severe Disabilities, Developmental Disabilities, Children, Quality of Life, Parent Attitudes, Comparative Analysis, Adolescents, Online Surveys, Psychological Patterns, Achievement, Friendship, Age Differences, Coping, Behavior Problems, Stress Variables, Parents, Educational Quality, Foreign Countries
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Authoring Institution: N/A
Identifiers - Location: Canada