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ERIC Number: ED509224
Record Type: Non-Journal
Publication Date: 2001
Pages: 4
Abstractor: ERIC
Counseling Students Who Have Usher Syndrome. NETAC Teacher Tipsheet
Lago-Avery, Patricia, Comp.
Northeast Technical Assistance Center (NETAC), Rochester Institute of Technology
Usher Syndrome is an autosomal recessive genetic disorder characterized by congenital hearing loss and gradually developing retinitis pigmentosa leading to the loss of vision. Approximately 25,000 people in the United States have some form of Usher Syndrome. Most of these individuals have either Type I (10,000) or Type II (15,000). Type I Usher Syndrome is characterized by profound congenital deafness, vision problems starting in early childhood, and severe balance problems. An individual born with a moderate to severe hearing loss and normal balance characterizes Type II Usher Syndrome. Night blindness for Type II begins at childhood, but many individuals might not be aware of it until late adolescence/early adulthood. College-age students with Usher Syndrome have many of the same developmental issues as other adolescents (age 18 to 24 years). However, students in this population have additional issues that are not encountered by students who have normal hearing and vision or even their deaf and hard-of-hearing peers who have normal vision. The purpose of this tipsheet is to identify particular issues of concern for college-age students who have Usher Syndrome, and list some strategies and tips for the reader. The reader will also find a list of resources for both professionals and students.
Northeast Technical Assistance Center (NETAC). National Technical Institute for the Deaf, 52 Lomb Memorial Drive, Rochester, NY 14623-5604. Tel: 585-475-6433; Fax: 585-475-7660; e-mail:; Web site:
Publication Type: Reports - Descriptive
Education Level: Higher Education
Audience: Teachers
Language: English
Sponsor: Office of Special Education and Rehabilitative Services (ED)
Authoring Institution: Rochester Institute of Technology, Northeast Technical Assistance Center(NETAC)
Identifiers - Location: United States