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Dikow, Nicola; Moog, Ute; Karch, Stephanie; Sander, Anja; Kilian, Samuel; Blank, Rainer; Reuner, Gitta – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Caring for a child with intellectual disability (ID) has been associated with increased social and psychological burdens. Diagnostic and prognostic uncertainty may enhance emotional stress in families. Method: The present authors assessed the motivations, expectations, mental health, physical health and the quality of life of 194…
Descriptors: Parent Attitudes, Expectation, Clinical Diagnosis, Genetics