NotesFAQContact Us
Collection
Advanced
Search Tips
Showing all 7 results Save | Export
Peer reviewed Peer reviewed
Direct linkDirect link
Talman, Lena; Wilder, Jenny; Stier, Jonas; Gustafsson, Christine – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Participation is a central aspect of quality of life, and it is indicative of high-quality outcomes for people with intellectual disabilities. However, participation is difficult to achieve for adults with profound intellectual and multiple disabilities. Aim: To describe staff members' perceptions of what participation means for adults…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Adults, Participation
Peer reviewed Peer reviewed
Direct linkDirect link
Eskow, Karen Goldrich; Summers, Jean Ann – Journal of Applied Research in Intellectual Disabilities, 2019
Background: An important mechanism that provides support and services for families with a child/youth with autism spectrum disorder is the home- and community-based services (HCBS) Waiver authorized by Section 1915(c) of the Social Security Act or Medicaid. Methods: This study used qualitative research methods to explore parent perspectives about…
Descriptors: Autism, Pervasive Developmental Disorders, Youth, Access to Health Care
Peer reviewed Peer reviewed
Direct linkDirect link
Rodrigues, Stephania A.; Fontanella, Bruno J. B.; Avó, Lucimar R. S.; Germano, Carla M. R.; Melo, Débora G. – Journal of Applied Research in Intellectual Disabilities, 2019
Background: This study investigated the psychocultural perspectives concerning family quality of life among Brazilian families with children who have severe or profound intellectual disability. Methods: Individual in-depth semi-structured interviews conducted with 15 mothers, selected by convenience, were analysed using a categorical thematic…
Descriptors: Foreign Countries, Quality of Life, Severe Intellectual Disability, Family Environment
Peer reviewed Peer reviewed
Direct linkDirect link
Sandjojo, Janice; Zedlitz, Aglaia M. E. E.; Gebhardt, Winifred A.; Hoekman, Joop; den Haan, Jeanet A.; Evers, Andrea W. M. – Journal of Applied Research in Intellectual Disabilities, 2019
Background: To help people with intellectual disabilities lead a more independent life, it is important to promote their self-management. This study evaluated the effectiveness of a self-management training for people with intellectual disabilities directed at independent functioning in daily life. Method: In the training, 17 people with…
Descriptors: Intellectual Disability, Self Management, Daily Living Skills, Quality of Life
Peer reviewed Peer reviewed
Direct linkDirect link
Schepens, Hadewych R. M. M.; Van Puyenbroeck, Joris; Maes, Bea – Journal of Applied Research in Intellectual Disabilities, 2019
Background: The increased life expectancy of people with intellectual disability intensifies the need for age-specific support. Research on effects of support strategies on quality of life (QoL) of these people remains scattered. Methods: A systematic search of peer-reviewed publications since 1995 was performed, with participants having…
Descriptors: Quality of Life, Intellectual Disability, Older Adults, Financial Support
Peer reviewed Peer reviewed
Direct linkDirect link
Taylor-Roberts, Laura; Strohmaier, Sarah; Jones, Fergal; Baker, Peter – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Community participation is considered a fundamental aspect of quality of life and one of the essential goals of services for people with intellectual disabilities, yet there is no agreed way of measuring community participation. Method: Two systematic searches were performed across eight electronic databases to identify measures of…
Descriptors: Intellectual Disability, Quality of Life, Psychometrics, Scores
Peer reviewed Peer reviewed
Direct linkDirect link
Dikow, Nicola; Moog, Ute; Karch, Stephanie; Sander, Anja; Kilian, Samuel; Blank, Rainer; Reuner, Gitta – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Caring for a child with intellectual disability (ID) has been associated with increased social and psychological burdens. Diagnostic and prognostic uncertainty may enhance emotional stress in families. Method: The present authors assessed the motivations, expectations, mental health, physical health and the quality of life of 194…
Descriptors: Parent Attitudes, Expectation, Clinical Diagnosis, Genetics