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Panicker, Anuja S.; Ramesh, Sonali – Journal of Applied Research in Intellectual Disabilities, 2019
Background: The psychological status of caregivers of individuals with intellectual disability and psychiatric illness (PI) is important for effective management. The aim of this study was to examine the psychological status and its relationship with coping styles among these caregivers. Materials & Methods: Caregivers (N = 80) of individuals…
Descriptors: Coping, Mental Disorders, Caregivers, Stress Variables
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Giesbers, Sanne A. H.; Tournier, Tess; Hendriks, Lex; Hastings, Richard P.; Jahoda, Andrew; Embregts, Petri J. C. M. – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Informal supportive networks of individuals with intellectual disability have become increasingly important. The aim of this paper is to describe how the Family Network Method--Intellectual Disability (FNM-ID) offers a way to gather the perspective of people with mild intellectual disability on their family support. Method: The FNM is…
Descriptors: Mild Intellectual Disability, Social Networks, Network Analysis, Family Programs
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Vandesande, Sien; Bosmans, Guy; Schuengel, Carlo; Maes, Bea – Journal of Applied Research in Intellectual Disabilities, 2019
Background: The hallmark of attachment is that contact, proximity and relief from stress are sought from specific individuals, laying important groundwork for healthy socioemotional functioning. This study investigated the extent to which differentiated attachment behaviour can be observed in young children with significant developmental delay…
Descriptors: Attachment Behavior, Developmental Delays, Young Children, Parent Child Relationship
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Folch, Annabel; Martínez-Leal, Rafael; Vicens, Paloma; Irazábal, Marcia; Muñoz, Silvia; Salvador-Carulla, Luis; Rovira, Lluís; Orejuela, Carmen; Cortés, Maria José – Journal of Applied Research in Intellectual Disabilities, 2019
Background: People with intellectual developmental disorders have significant health disparities and a lack of proper attention to their health needs. They have been underrepresented in scientific research, and very few studies have been carried out using a representative randomized sample. The aim of this study was to describe the methods used in…
Descriptors: Intellectual Disability, Developmental Disabilities, Access to Health Care, Health Services
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Embregts, Petri J. C. M.; Negenman, Annemarieke; Habraken, Jolanda M.; de Boer, Marike E.; Frederiks, Brenda J. M.; Hertogh, Cees M. P. M. – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Due to incompatibilities in communication, it is key that family members and support staff can take the perspective of people with moderate to profound intellectual disabilities (ID) whilst putting aside their own perspectives. Method: Ten vignettes describing types of restraint interventions (RIs) were presented to 20 unique pairs of…
Descriptors: Intervention, Vignettes, Intellectual Disability, Communication Problems
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Folch, Annabel; Salvador-Carulla, Luis; Vicens, Paloma; Cortés, Maria José; Irazábal, Marcia; Muñoz, Silvia; Rovira, Lluís; Orejuela, Carmen; González, Juan A.; Martínez-Leal, Rafael – Journal of Applied Research in Intellectual Disabilities, 2019
Background: The aim of this paper was to summarize the main results of the POMONA-ESP project, the first study to explore health status in a large representative, randomized and stratified sample of people with intellectual developmental disorders in Spain. Methods: The POMONA-ESP project collected information about the health of 953 individuals…
Descriptors: Health, Intellectual Disability, Health Services, Drug Therapy
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Okon, Marian; Henderson, Angela; Kinnear, Deborah; Cooper, Sally-Ann – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Following the global financial crisis in 2007/08, the UK implemented an austerity programme which may impact on services. Scotland comprises both densely populated urban conurbations and highly dispersed remote rural and island communities. Method: Expenditure data were extracted from Scottish Government statistics. Per capita…
Descriptors: Foreign Countries, Expenditures, Adults, Intellectual Disability
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Talman, Lena; Wilder, Jenny; Stier, Jonas; Gustafsson, Christine – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Participation is a central aspect of quality of life, and it is indicative of high-quality outcomes for people with intellectual disabilities. However, participation is difficult to achieve for adults with profound intellectual and multiple disabilities. Aim: To describe staff members' perceptions of what participation means for adults…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Adults, Participation
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Murray, George; McKenzie, Karen; Murray, Aja; Whelan, Kathryn; Cossar, Jill; Murray, Kara; Scotland, Jennifer – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Research suggests that having relevant contextual information can help increase the accuracy of emotion recognition in typically developing (TD) individuals and adults with an intellectual disability. The impact of context on the emotion recognition of children with intellectual disability is unknown. Method: Emotion recognition tasks,…
Descriptors: Context Effect, Emotional Response, Intellectual Disability, Children
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Vicente, Eva; Guillén, Verónica Marina; Gómez, Laura Elisabet; Ibáñez, Alba; Sánchez, Sergio – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Advances in international studies on self-determination point out the need for continuous efforts to deepen its understanding and implications. The aim of this study is to obtain a comprehensive pool of items to operationalize the self-determination construct that serves as a starting point towards a valid instrument based on the…
Descriptors: Stakeholders, Self Determination, Intellectual Disability, Professional Personnel
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Ouellette-Kuntz, Hélène; Martin, Lynn; Burke, Eilish; McCallion, Philip; McCarron, Mary; McGlinchey, Eimear; Sandberg, Magnus; Schoufour, Josje; Shooshtari, Shahin; Temple, Bev – Journal of Applied Research in Intellectual Disabilities, 2019
Background: While higher rates and earlier onset of frailty have been reported among adults with intellectual and developmental disabilities (IDD), research on how best to support these individuals is lacking. Method: An international consultation relied on three consensus building methods--the Nominal Group Technique, an NIH consensus conference…
Descriptors: Intellectual Disability, Best Practices, Aging (Individuals), Safety
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Kpobi, Lily; Swartz, Leslie – Journal of Applied Research in Intellectual Disabilities, 2019
Background: The use of traditional/alternative medicine for health care in Africa has been examined for various conditions. However, there is limited research about traditional/alternative health care for intellectual disability. The present authors explored the explanatory models (EMs) of intellectual disability held by traditional/faith healers…
Descriptors: Foreign Countries, Health Services, Intellectual Disability, Beliefs
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James, Jessica S. – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Individuals with intellectual disability are subject to stigmatization, even among those providing services to them. Method: Employees from an intermediate care facility (n = 97) and undergraduate students (n = 92) completed measures on their attitudes, beliefs of etiological causes and endorsement of helpful treatments and supports.…
Descriptors: Intellectual Disability, Social Bias, Residential Care, Intervention
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Wouters, Marieke; Evenhuis, Heleen M.; Hilgenkamp, Thessa I. M. – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Regular participation of children and adolescents with intellectual disabilites in physical activity is important to maintain good health and to acquire motor skills. The aim of this study was to investigate the habitual physical activity in these children. Methods: Sixty-eight children and adolescents (2-18 years) with a…
Descriptors: Physical Activity Level, Intellectual Disability, Motor Development, Children
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Eskow, Karen Goldrich; Summers, Jean Ann – Journal of Applied Research in Intellectual Disabilities, 2019
Background: An important mechanism that provides support and services for families with a child/youth with autism spectrum disorder is the home- and community-based services (HCBS) Waiver authorized by Section 1915(c) of the Social Security Act or Medicaid. Methods: This study used qualitative research methods to explore parent perspectives about…
Descriptors: Autism, Pervasive Developmental Disorders, Youth, Access to Health Care
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