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ERIC Number: EJ982024
Record Type: Journal
Publication Date: 2012-Nov
Pages: 13
Abstractor: As Provided
Reference Count: 63
ISSN: ISSN-1360-2322
End-of-Life Care and Dying: Issues Raised by Staff Supporting Older People with Intellectual Disability in Community Living Services
Wiese, Michele; Stancliffe, Roger J.; Balandin, Susan; Howarth, Glennys; Dew, Angela
Journal of Applied Research in Intellectual Disabilities, v25 n6 p571-583 Nov 2012
Background: The aim of this study was to explore the current status of end-of-life care and dying of people with intellectual disability based on the experiences of staff in community living services. Materials and Methods: Focus groups and individual interviews were conducted, guided by grounded theory methodology. Results: The current status of end-of-life care and dying comprised five key "issues": knowledge of dying, ethical values, the where of caring, the how of caring and post-death caring. These issues occurred in relationship with "partners", including the dying person, other clients, fellow staff, family, external health services and the coroner. Conclusions: End-of-life care represents a complex interaction between the care issues and the partners involved in care. Despite this complexity, staff were committed to the provision of end-of-life care. (Contains 1 note, 1 table, and 1 figure.)
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: Australia