ERIC Number: EJ962123
Record Type: Journal
Publication Date: 2011-Jun
Pages: 10
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1366-8250
EISSN: N/A
Available Date: N/A
Choice Processes and Satisfaction with Care According to Parents of Children and Young Adults with Intellectual Disability in the Netherlands
Nieboer, Anna P.; Cramm, Jane M.; van der Meij, Birgitha; Huijsman, Robbert
Journal of Intellectual & Developmental Disability, v36 n2 p127-136 Jun 2011
Background: Despite the expressed desire for access to information on care providers and increased availability of this information, the use of available information falls short of expectations. We lack research on the decision-making processes and on how these processes are influenced. A study that employs "real-life" decisions is necessary. Methods: Our experimental study design established the effects of providing decision-support information only (services/quality indicators) and providing a combination of information and personal decision-making support (counselling/peer meetings) on the choice process and satisfaction with care. Results: These forms of support affected the choice process, but did not affect satisfaction with care. Decision-support information combined with personal decision-making support led to less frequent switching of care providers and to more satisfaction with choice information. Parents make limited use of online decision-support information, but did use decision counselling. Conclusion: This population is better supported with an intensified personal approach rather than through the current generic approach using websites. (Contains 1 note, 3 tables, and 1 figure.)
Descriptors: Mental Retardation, Access to Information, Young Adults, Parents, Foreign Countries, Counseling, Program Effectiveness, Satisfaction, Children, Decision Making, Caregivers, Web Sites, Outcomes of Treatment, Parent Attitudes
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: Netherlands
Grant or Contract Numbers: N/A
Author Affiliations: N/A

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