NotesFAQContact Us
Search Tips
Peer reviewed Peer reviewed
Direct linkDirect link
ERIC Number: EJ961781
Record Type: Journal
Publication Date: 2010-Dec
Pages: 15
Abstractor: As Provided
ISSN: ISSN-1366-8250
Make Measurable What Is Not So: National Monitoring of the Status of Persons with Intellectual Disability
Fujiura, Glenn T.; Rutkowski-Kmitta, Violet; Owen, Randall
Journal of Intellectual & Developmental Disability, v35 n4 p244-258 Dec 2010
Background: Statistics are critical in holding governments accountable for the well-being of citizens with disability. International initiatives are underway to improve the quality of disability statistics, but meaningful ID data is exceptionally rare. Method: The status of ID data was evaluated in a review of 12 national statistical systems. Recurring data collection by national ministries was identified and the availability of measures of poverty, exclusion, and disadvantage was assessed. Results: A total of 131 recurring systems coordinated by 50 different ministries were identified. The majority included general disability but less than 25% of the systems screened ID. Of these, few provided policy-relevant data. Conclusions: The scope of ID data was dismal at best, though a significant statistical infrastructure exists for the integration of ID data. Advocacy will be necessary. There is no optimal form of data monitoring, and decisions regarding priorities in purpose, targeted audiences, and the goals for surveillance must be resolved. (Contains 1 figure, 2 tables, and 1 note.)
Informa Healthcare. Telephone House, 69-77 Paul Street, London, EC2A 4LQ, UK. Tel: 800-354-1420; e-mail:; Web site:
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: Brazil; China; Egypt; Germany; India; Ireland; Japan; Nigeria; Russia; South Africa; United Kingdom (Northern Ireland); United States