ERIC Number: EJ958435
Record Type: Journal
Publication Date: 2008-Sep
Abstractor: As Provided
Reference Count: 35
Perspectives of Parents and Tutors on a Self-Management Program for Parents/Guardians of Children with Long-Term and Life-Limiting Conditions: "A Life Raft We Can Sail along with"
Barlow, Julie; Swaby, Laura; Turner, Andrew
Journal of Community Psychology, v36 n7 p871-884 Sep 2008
The lay-led, community-based Supporting Parents Programme (SPP) aims to assist parents caring for children with long-term or life-limiting conditions through support and cognitive behavioral techniques. The value of the SPP from the perspectives of parent participants and tutors was examined in focus groups and telephone interviews. Data were analyzed using framework analysis. Parents perceived a commonality of emotions and practical issues, valued meeting similar others, felt less isolated, more positive, motivated, and more calm; some had found the "real me again." Changes were attributed to techniques learned. Parents were anxious of being cast adrift at the end of SPP. Tutors needed more support and additional training around child protection and confidentiality.
Descriptors: Foreign Countries, Disabilities, Focus Groups, Confidentiality, Behavior Modification, Family Programs, Interviews, Parent Attitudes, Teacher Attitudes, Program Effectiveness, Social Support Groups, Child Welfare, Self Management, Child Rearing, Child Caregivers, Chronic Illness, Child Health, Behavior Theories, Trainers, Training Methods, Adult Education
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Publication Type: Journal Articles; Reports - Research
Education Level: Adult Education
Authoring Institution: N/A
Identifiers - Location: United Kingdom