ERIC Number: EJ949234
Record Type: Journal
Publication Date: 2012-Jan
Abstractor: As Provided
Reference Count: 0
Longitudinal Study of Parents' Impact on Quality of Life of Children and Young Adults with Intellectual Disabilities
Cramm, Jane M.; Nieboer, Anna P.
Journal of Applied Research in Intellectual Disabilities, v25 n1 p20-28 Jan 2012
Background: Earlier research has distinguished five domains of Quality of life (QoL) for people with ID: material well-being, development and activity, physical well-being, social well-being, and emotional well-being. We investigated parents' perspectives on these domains and QoL for children and young adults with ID and hypothesized that parents' well-being would be a predictive factor in QoL of their children with ID. Methods: Our longitudinal study administered questionnaires to parents at T[subscript 0] (n = 147) and T1 (n = 108). The inclusion criteria were: (i) the child's age 0-24 years and (ii) the child's intellectual disability (IQ less than 70 or IQ less than 85 in combination with behavioural problems). Results: Social well-being of parents (P less than or equal to 0.001), changes in parents' social well-being (P less than or equal to 0.01) and changes in children's social well-being (P less than or equal to 0.05) were strong predictors of QoL for children with ID. Emotional well-being of children with ID (P less than or equal to 0.01), changes in children's emotional well-being (P less than or equal to 0.01) and changes in emotional well-being of parents (P less than or equal to 0.05) also predicted QoL of children with ID. Material well-being of parents, and health, development and activity of the children were not predictors. Conclusion: Our study revealed that predictors of QoL in children and young adults with ID occurred in the following domains: physical well-being (children), social well-being (parents and children) and emotional well-being (parents and children).
Descriptors: Mental Retardation, Well Being, Intelligence Quotient, Questionnaires, Young Adults, Longitudinal Studies, Child Development, Physical Health, Social Development, Emotional Development, Children, Parents, Predictor Variables
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
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