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ERIC Number: EJ947612
Record Type: Journal
Publication Date: 2011-Dec
Pages: 7
Abstractor: As Provided
Reference Count: N/A
ISSN: ISSN-1354-4187
Exploring the Experiences of People with Intellectual Disabilities when Service Users Die
Ryan, Karen; Guerin, Suzanne; Dodd, Philip; McEvoy, John
British Journal of Learning Disabilities, v39 n4 p259-265 Dec 2011
Research is lacking on the effect of the deaths of fellow service users on people with intellectual disabilities. This qualitative study formed part of a project which aimed to describe the provision of palliative care to people with intellectual disabilities in Ireland and to assess the population's palliative care needs. We report on findings from 16 focus groups held with staff in which participants described their perception of the experiences of people with intellectual disabilities when other service users die. Interviews were analysed using Framework Analysis. The findings highlight the emotional impact of the death of a friend on people with intellectual disabilities. Situations where staff facilitated the involvement of services users are described, and the study points to the benefits of this approach. Possible barriers to involvement are highlighted. The findings affirm the importance of ensuring that people with intellectual disabilities have a good understanding of the concept of death to alleviate the bereavement experience.
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: Ireland