ERIC Number: EJ947389
Record Type: Journal
Publication Date: 2011-Dec
Abstractor: As Provided
Reference Count: 22
Family Quality of Life in 25 Belgian Families: Quantitative and Qualitative Exploration of Social and Professional Support Domains
Steel, R.; Poppe, L.; Vandevelde, S.; Van Hove, G.; Claes, C.
Journal of Intellectual Disability Research, v55 n12 p1123-1135 Dec 2011
Background: This article reports on the results of a study conducted in Belgium on family quality of life situated within a larger project focusing on the development of support strategies for young and adolescent siblings of persons with intellectual disabilities. The objectives of this article are twofold: (1) to present the results of the measures contained in the nine domains of the "Family Quality of Life Survey-2006" ("FQOLS-2006") from the perspective of parents (quantitative analysis); and (2) to come to a more in-depth understanding of two important domains of the "FQOLS-2006" by exploring and comparing the quantitative and qualitative data from open-ended interviews with parents. Method: The "FQOLS-2006" was completed by the main caregivers of 25 families living in one typical Belgian province. Subsequently, semi-structured interviews with one or both parents were conducted within the same families. Content analysis was carried out on the transcribed interviews using the qualitative software package MaxQDA. Results: A detailed analysis of the quantitative data together with data from the content analysis of the interviews revealed important issues with regard to two family quality of life domains, "support from others and support from services." In general, parents were satisfied with the professional support they received, whereas they were more critical of support from others. Conclusions: The quantitative data from the "FQOLS-2006" were supported and further explained by the qualitative data. These findings highlight the importance of adequate professional support, which is a flexible and capable answer to each family's individual needs. The authors warn of the dangers of "handicapism" and plea for a family-centred support approach that takes the whole family into account. Finally, they indicate the benefits of increased practical-pedagogical support.
Descriptors: Foreign Countries, Family (Sociological Unit), Quality of Life, Mental Retardation, Parents, Interviews, Satisfaction, Social Services, Social Support Groups
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Authoring Institution: N/A
Identifiers - Location: Belgium