ERIC Number: EJ943319
Record Type: Journal
Publication Date: 2011-Jan
Abstractor: As Provided
Reference Count: 0
Exploring the Adult Life of Men and Women with Fragile X Syndrome: Results from a National Survey
Hartleyand, Sigan L.; Seltzer, Marsha Mailick; Raspa, Melissa; Olmstead, Murrey; Bishop, Ellen; Bailey, Donald B., Jr.
American Journal on Intellectual and Developmental Disabilities, v116 n1 p16-35 Jan 2011
Using data from a national family survey, the authors describe the adult lives (i.e., residence, employment, level of assistance needed with everyday life, friendships, and leisure activities) of 328 adults with the full mutation of the FMR1 gene and identify characteristics related to independence in these domains. Level of functional skills was the strongest predictor of independence in adult life for men, whereas ability to interact appropriately was the strongest predictor for women. Co-occurring mental health conditions influenced independence in adult life for men and women, in particular, autism spectrum disorders for men and affect problems for women. Services for adults with fragile X syndrome should not only target functional skills but interpersonal skills and co-occurring mental health conditions.
Descriptors: Genetic Disorders, Mental Retardation, Adults, National Surveys, Independent Living, Daily Living Skills, Interpersonal Competence, Mental Health, Pervasive Developmental Disorders, Autism, Predictor Variables
American Association on Intellectual and Developmental Disabilities. P.O. Box 1897, Lawrence, KS 66044-1897. Tel: 785-843-1235; Fax: 785-843-1274; e-mail: AJMR@allenpress.com; Web site: http://aaidd.allenpress.com
Publication Type: Journal Articles; Reports - Evaluative
Education Level: N/A
Authoring Institution: N/A