ERIC Number: EJ929058
Record Type: Journal
Publication Date: 2011-May
Abstractor: As Provided
Reference Count: 22
Recruitment and Consent of Women with Intellectual Disabilities in a Randomised Control Trial of a Health Promotion Intervention
Swaine, J.; Parish, S. L.; Luken, K.; Atkins, L.
Journal of Intellectual Disability Research, v55 n5 p474-483 May 2011
Background: The need for evidence-based health promotion interventions for women with intellectual and developmental disabilities is critical. However, significant barriers impede them from participating in research, including those related to recruitment and obtaining informed consent. Methods: This study describes a procedure for the recruitment and consent of women with intellectual disabilities into a community-based, multi-site randomised controlled trial. Results: Of 269 women who participated in information sessions, 203 (75%) enrolled in the study. While women with and without legal guardians consented at the same approximate rates (83% and 85%, respectively), those with legal guardians enrolled at significantly lower rates (61%) because of lower rates (74%) of guardian consent. Conclusions: It is possible to recruit community-dwelling women with intellectual disabilities into randomised controlled trials at relatively high participation rates. Recruiting women who have guardians poses additional challenges for researchers.
Descriptors: Females, Recruitment, Mental Retardation, Health Promotion, Intervention, Participation, Research
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Authoring Institution: N/A