ERIC Number: EJ910441
Record Type: Journal
Publication Date: 2010
Abstractor: As Provided
Reference Count: 0
Deaf Adults' Reasons for Genetic Testing Depend on Cultural Affiliation: Results from a Prospective, Longitudinal Genetic Counseling and Testing Study
Boudreault, Patrick; Baldwin, Erin E.; Fox, Michelle; Dutton, Loriel; Tullis, LeeElle; Linden, Joyce; Kobayashi, Yoko; Zhou, Jin; Sinsheimer, Janet S.; Sininger, Yvonne; Grody, Wayne W.; Palmer, Christina G. S.
Journal of Deaf Studies and Deaf Education, v15 n3 p209-227 Sum 2010
This article examines the relationship between cultural affiliation and deaf adults' motivations for genetic testing for deafness in the first prospective, longitudinal study to examine the impact of genetic counseling and genetic testing on deaf adults and the deaf community. Participants (n = 256), classified as affiliating with hearing, Deaf, or "both" communities, rated interest in testing for 21 reasons covering 5 life domains. Findings suggest strong interest in testing to learn why they are deaf, but little interest in using it for decisions about a partner or having children. Culturally mediated variation was also demonstrated. Deaf and "both" communities groups viewed testing as useful for more life domains than the hearing community group. Deaf and "both" communities had similar motivations related to further exploration, understanding, or strengthening of deafness. Motivations related to "hearing" were also relevant for "both" communities. We conclude that cultural affiliation is an important factor for constructing motivations for genetic testing.
Descriptors: Deafness, Testing, Genetics, Genetic Disorders, Cultural Influences, Longitudinal Studies, Counseling, Attitude Measures, Comparative Analysis, Motivation, Adults
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Authoring Institution: N/A