ERIC Number: EJ908920
Record Type: Journal
Publication Date: 2010-Dec
Lessons Learned: Parents of Children with Disabilities Offer Recommendations for Strategies that Work
Schumacher Dyke, Karin; Bauer, Lisabeth S.
Exceptional Parent, v40 n12 p21-22 Dec 2010
When it comes to making the right choices for children with disabilities, families are the experts. To prove this point, the Hatton Project sponsored a grant wherein researchers interviewed members of 12 families of children with disabilities on factors that caused them to identify themselves as "successful." The results yielded eight lessons learned from dealing with disability within the family that participants said ensured a happy, health life for all members. This article presents and describes these eight lessons learned: (1) Acknowledge one's grief; (2) Make a strong family; (3) Seek medical, psychological, and educational professionals who are experienced with children with special needs, flexible in their practices, and committed to collaboration with families; (4) Be proactive; (5) Be creative about finding funding and resources for caretaking; (6) Allow spirituality in family life; (7) Create personal time for each family member; and (8) Find ways to include the special needs child in the larger world. Within these lessons are concrete ideas for dealing with disabilities within a family.
Descriptors: Family Life, Disabilities, Parents, Special Needs Students, Parent Attitudes, Planning, Interviews, Success, Life Style, Well Being, Grief, Coping, Psychological Patterns, Family Relationship, Access to Health Care, Access to Education, Cooperative Planning, Advocacy, Financial Support, Spiritual Development, Religion, Inclusion
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Publication Type: Journal Articles; Reports - Descriptive
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