ERIC Number: EJ904080
Record Type: Journal
Publication Date: 2007
Abstractor: As Provided
Reference Count: 59
The next Exclusion Debate: Assessing Technology, Ethics, and Intellectual Disability after the Human Genome Project
Munger, Kelly M.; Gill, Carol J.; Ormond, Kelly E.; Kirschner, Kristi L.
Mental Retardation and Developmental Disabilities Research Reviews, v13 n2 p121-128 2007
Recent scientific discoveries have made it much easier to test prenatally for various genetic disabilities, such as Down syndrome. However, while many observers have heralded such "advances" for their effectiveness in detecting certain conditions, others have argued that they perpetuate discrimination by preventing the birth of children with disabilities. This article examines the ethical and social implications of the Human Genome Project for individuals with intellectual disabilities and their families. It details the critique of prenatal testing articulated by many disability rights activists as well as scholarly and professional responses to that critique. A review of the pertinent research literature includes perspectives of genetic professionals, ethicists, disability studies scholars, parents of children with disabilities, and disabled individuals themselves. Finally, the article explores how future research endeavors, policies, and practices may more effectively integrate and respect the positions of these various stakeholders.
Descriptors: Down Syndrome, Genetics, Parents, Ethics, Literature Reviews, Screening Tests, Genetic Disorders, Social Discrimination, Social Attitudes, Mental Retardation, Civil Rights
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Publication Type: Journal Articles; Reports - Evaluative
Education Level: N/A
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