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ERIC Number: EJ890390
Record Type: Journal
Publication Date: 2010-Apr
Pages: 13
Abstractor: As Provided
Reference Count: 0
ISSN: ISSN-1934-9556
Narrating Disability, Narrating Religious Practice: Reconciliation and Fragile X Syndrome
Michie, Marsha; Skinner, Debra
Intellectual and Developmental Disabilities, v48 n2 p99-111 Apr 2010
This article examines the place of religion in the narratives of mothers of children with fragile X syndrome. In semistructured interviews, a majority of women combined narratives of religious practice with illness narratives, interpreting their children's disabilities within a religious framework. Informed by Arthur Frank's (1995) concept of "wounded storytellers," the authors articulate a "reconciliation narrative" that mothers commonly used to describe their transition from viewing disability as a burden or challenge to seeing it as a blessing, or as a part of God's purpose or plan for their lives. The authors discuss the significance of narrative for better understanding religious perspectives on disability and conclude with the implications of these findings for practitioners and future research.
American Association on Intellectual and Developmental Disabilities. P.O. Box 7065, Lawrence, KS 66044-7065. Tel: 785-843-1235; Fax: 785-843-1274; e-mail:; Web site:
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A