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ERIC Number: EJ886742
Record Type: Journal
Publication Date: 2010-Jul
Pages: 8
Abstractor: As Provided
Reference Count: N/A
ISSN: ISSN-1360-2322
The Experiences of Parents during Diagnosis and Forward Planning for Children with Autism Spectrum Disorder
Keenan, Mickey; Dillenburger, Karola; Doherty, Alvin; Byrne, Tony; Gallagher, Stephen
Journal of Applied Research in Intellectual Disabilities, v23 n4 p390-397 Jul 2010
Background: For families of children diagnosed with autism spectrum disorder (ASD) getting a diagnosis is a traumatic experience on which future care and education plans for the child depend. In this paper parental experiences of diagnosis and forward planning for children with ASD are reported. Method: This paper is part of a large cross-sectional study conducted in Northern Ireland and the Republic of Ireland that assessed the needs and experiences of parents of children diagnosed with ASD. Questionnaires were designed and completed by 95 parents, reporting on 100 children, as well as 67 multi-disciplinary professionals. Results: Findings confirm that diagnostic and planning processes are extremely stressful for parents, that statutory diagnosis takes a long time, that care and education plans do not include full parental participation, and that reviews of plans do not consistently include intervention data. Conclusion: Policy and practice implications of these findings are important for future revisions of diagnostic tools and manuals.
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: Ireland; United Kingdom (Northern Ireland)