ERIC Number: EJ876652
Record Type: Journal
Publication Date: 2010-Apr
Abstractor: As Provided
Reference Count: 0
End-of-Life Caregiver's Perspectives on Their Role: Generative Caregiving
Phillips, Linda R.; Reed, Pamela G.
Gerontologist, v50 n2 p204-214 Apr 2010
Purpose: To describe caregivers' constructions of their caregiving role in providing care to elders they knew were dying from life-limiting illnesses. Design and Methods: Study involved in-depth interviews with 27 family caregivers. Data were analyzed using constant comparative analysis. Results: Four categories were identified: centering life on the elder, maintaining a sense of normalcy, minimizing suffering, and gift giving. Generative caregiving was the term adopted to describe the end-of-life (EOL) caregiving role. Generative caregiving is situated in the present with a goal to enhance the elder's present quality of life, but also draws from the past and projects into the future with a goal to create a legacy that honors the elder and the elder-caregiver relationship. Implications: Results contribute to our knowledge about EOL caregiving by providing an explanatory framework and setting the caregiving experience in the context of life-span development.
Descriptors: Quality of Life, Caregivers, Death, Caregiver Role, Interviews, Older Adults, Caregiver Attitudes, Helping Relationship, Comparative Analysis, Family Environment
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Authoring Institution: N/A