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ERIC Number: EJ867789
Record Type: Journal
Publication Date: 2009-Nov
Pages: 5
Abstractor: ERIC
Reference Count: 10
ISSN: ISSN-0194-2638
Transition to Adult-Oriented Health Care: Perspectives of Youth and Adults with Complex Physical Disabilities
Gorter, Jan Willem
Physical & Occupational Therapy in Pediatrics, v29 n4 p362-366 Nov 2009
In their qualitative study, Young and colleagues (2009) found that youth and adults with cerebral palsy (CP), spina bifida, and acquired brain injuries of childhood in the province of Ontario, Canada, perceive or have perceived their transfer from pediatric to adult-oriented health care services as a struggle. Although publications on transition have identified this problem and similar key themes for many years, these statements were based on clinical expertise rather than research evidence. The messages for clinical practice from this study are highly important, as it provides insight in the process of clinical transition of adolescents with disabilities as well as with "points of entry" to improve transition to adult-oriented health care. Clinical transition is a problem and it is time to do something about it. A research team and a network of youth, parents, community members, and service providers in Ontario, Canada, developed an evidence-based model and best practice guidelines for the transition to adulthood for youth with disabilities entitled "The Best Journey to Adult Life" (Stewart et al., 2009). The basics of transition are simple and are common to all chronic conditions and disabilities. Firstly, young people and their families need to be prepared well in advance for moving from pediatric to adult services, and they need to have the necessary skill set to survive and thrive there. Secondly, it is important to prepare and nurture adult services to receive youth with childhood onset disabilities. Thirdly, health care providers have to listen to young people's views. Working with adolescents and their families in (clinical) transition is exciting, challenging, and sometimes difficult and frustrating. It also is an ideal time to educate adolescents about how to best care for their bodies and their life.
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Publication Type: Journal Articles; Opinion Papers
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: Canada