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ERIC Number: EJ866330
Record Type: Journal
Publication Date: 2009-Sep
Pages: 2
Abstractor: ERIC
Reference Count: 0
ISSN: ISSN-0046-9157
Our Child Is More than His or Her Diagnosis: Views of Parents of Children with Angelman Syndrome
Kirk, Rea; Leyser, Yona
Exceptional Parent, v39 n9 p34-35 Sep 2009
This article presents the results of a study which solicited input from parents of children with Angelman syndrome (AS) regarding the schooling and education of their children. This is a group whose views about these issues have not been widely explored. The first reports of AS in the United States were in the early 1980's. Because it is a relatively new diagnosis, and because it is rare, the exact number of people with AS is unknown. It is estimated that the prevalence is about one in 15,000 to 30,000. AS is characterized by problems with neurological, motor, and intellectual functioning. A person with AS typically lacks communication skills, both receptive and expressive, and has motor problems. Persons with AS have a severe mental delay and a short attention span. Seizures and problems with eating and sleeping are associated with AS. Hand flapping is another common symptom. Individuals with AS have been characterized as usually having a happy demeanor. Questionnaires were distributed with the support of the Angelman Foundation to members. Sixty-eight parents responded. Surveys were completed mostly (80%) by mothers. The majority were married (86%). Over three-fourths (78.8%) were European-American, and a similar percentage of respondents considered themselves to be middle income. Most of the children with AS (42%) were between the ages of 6-12, 25% were between 3-5, and 33% were ages 12-18+.
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A