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ERIC Number: EJ858502
Record Type: Journal
Publication Date: 2009-Sep
Pages: 10
Abstractor: As Provided
Reference Count: 33
ISSN: ISSN-1366-8250
Understanding Mealtime Changes for Adults with Cerebral Palsy and the Implications for Support Services
Balandin, Susan; Hemsley, Bronwyn; Hanley, Leah; Sheppard, Justine Joan
Journal of Intellectual & Developmental Disability, v34 n3 p197-206 Sep 2009
Background: Changes in the swallowing capabilities of adults with cerebral palsy as they age may impact on their health, safety, and well-being. Method: Thirty-two adults with cerebral palsy aged between 30 and 69 years participated in in-depth interviews about their experiences of changes in their swallowing and related management of their mealtimes within the last two years. A constant comparative qualitative analysis of the interviews elucidated the changes they experienced. Results: Changes included increased coughing and choking, digestive or gastro-oesophageal symptoms, diet modification, loss of independence with psychosocial consequences. Participants reported unsatisfactory collaboration with service providers over mealtime management decisions and interventions. Conclusions: Adults with cerebral palsy may experience gradual changes in their swallowing and mealtime capabilities from as early as 30 years of age. Regular collaborative assessment and involvement of all stakeholders in decisions are important to facilitate compliance with recommendations, ongoing safety, and optimal well-being. (Contains 1 table.)
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A