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ERIC Number: EJ858484
Record Type: Journal
Publication Date: 2009-Sep
Pages: 8
Abstractor: As Provided
Reference Count: 25
ISSN: ISSN-1366-8250
A Content Analysis from a US Statewide Survey of Memorable Healthcare Decisions for Individuals with Intellectual Disability
Fisher, Kathleen M.; Green, Michael J.; Orkin, Fredrick K.; Chinchilli, Vernon M.
Journal of Intellectual & Developmental Disability, v34 n3 p258-265 Sep 2009
Background: Little is known about surrogate healthcare decision-making for individuals with intellectual disability (ID). This study examined healthcare decision-making by residential-agency directors to learn their process and the extent to which the individual is included. Method: Content analysis of qualitative data from a mailed survey of residential-agency directors in a large US northeastern state. Results: Narrative comments of 102 directors (65% of respondents) are reported. Three themes emerged: (a) Identifying someone else's "best interest" is challenging; (b) Perceptions of the healthcare community, especially related to quality of life, can influence care provided; and (c) Surrogate decision-making is a team effort. Conclusions: With knowledge of how decisions are made, the healthcare community can better interact with the complex array of service agencies and persons who determine care for this vulnerable population. (Contains 2 tables.)
Taylor & Francis, Ltd. 325 Chestnut Street Suite 800, Philadelphia, PA 19106. Tel: 800-354-1420; Fax: 215-625-2940; Web site:
Publication Type: Journal Articles; Reports - Research
Education Level: Adult Education
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A