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ERIC Number: EJ846933
Record Type: Journal
Publication Date: 2005
Pages: 11
Abstractor: As Provided
Reference Count: 45
ISSN: ISSN-0827-3383
The Retrospective Experiences of a Mother of a Child with Autism
Krausz, Mariann; Meszaros, Judit
International Journal of Special Education, v20 n2 p36-46 2005
This unique study used qualitative research methodology to investigate the first 18 years of parenting experiences of a mother of a child with autism. The purpose of this single case study was to record and understand the effect of autism on a mother's life retrospectively, to identify and analyse issues and themes that have shaped her life, to understand the stages and characteristics of a parent adaptation to a child with autism, and to form implications that could be learned from the participant's experiences. It is written as a narrative which is a form of meaning making that organizes human experiences into temporally meaningful episodes. By using the narrative approach, the authors were able to authentically document the steps of accepting a child's handicapping condition, which is an extremely difficult and often a heart-breaking process. Data was collected through in-depth, semi-structured interviews. Eleven consistent themes emerged from the interview data. One new theme; "falling apart" which was coined by the authors, and two coping strategies; "advocating" and "setting limits", surfaced which were not represented previously in the literature. These new discoveries, the participant's successful instrumental and palliative coping strategies and the implications of having a child with autism on her life are discussed. (Contains 1 table.)
International Journal of Special Education. 2889 Highbury Street, Vancouver, BC V6R 3T7, Canada. Web site:
Publication Type: Journal Articles; Reports - Evaluative
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A