ERIC Number: EJ836223
Record Type: Journal
Publication Date: 2005-Mar
Abstractor: As Provided
Reference Count: 0
Providing Care for Adults with Autistic Spectrum Disorders in Learning Disability Services: Needs-Based or Diagnosis-Driven?
Bennett, Heather E.; Wood, Clare L.; Hare, Dougal Julian
Journal of Applied Research in Intellectual Disabilities, v18 n1 p57-64 Mar 2005
Background: This study assessed whether a Learning Disability Service should develop a specific autism strategy or provide services on a needs-led basis. Materials and methods: An autism screening questionnaire had been used to identify individuals scoring above a cut-off who had (n = 9) or had not (n = 15) received a formal diagnosis of autism. A sample of low scorers (n = 22) were matched to these groups. Questionnaires assessing service provision, needs (disabilities and challenging behaviour), quality of life and knowledge of autism were sent to relatives of individuals living at home or key-workers for those living in supported housing. Results: The high scoring groups had similar levels of needs. Those diagnosed with autism received more services in total while the high scoring group without autism diagnoses scored significantly lower on quality of life. Although these differences were not maintained when level of disability was taken into account, it appeared that there was some level of unmet need in the high scorers without autism diagnoses group. Conclusions: It appeared that resources should be targeted at identifying and addressing the specific needs of individuals presenting with autistic spectrum difficulties.
Descriptors: Autism, Mental Retardation, Quality of Life, Identification, Scoring, Pervasive Developmental Disorders, Needs Assessment, Screening Tests, Questionnaires, Behavior Problems, Knowledge Level, Family Environment, Caregivers
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Authoring Institution: N/A