ERIC Number: EJ836200
Record Type: Journal
Publication Date: 2004-Sep
Abstractor: As Provided
Reference Count: 0
Social and Professional Support for Parents of Adolescents with Severe Intellectual Disabilities
White, Nia; Hastings, Richard P.
Journal of Applied Research in Intellectual Disabilities, v17 n3 p181-190 Sep 2004
Background: Previous research has identified various dimensions of social support that are positively associated with parental well-being. However, most research does not include multiple measures of social support and uses heterogeneous samples in terms of child characteristics such as age and severity of intellectual disability. Methods: Thirty-three parents of adolescent children with moderate-profound intellectual disabilities completed measures of parental well-being (stress, anxiety and depression, and caregiving satisfaction), social support (informal and formal sources, and practical and emotional support), and child characteristics (adaptive and problem behaviours). Results: Correlation analyses showed that parental well-being was associated with the child's adaptive and problem behaviours and with the child's autism diagnosis. Parents' ratings of the helpfulness of informal sources of support (spouse, extended family, friends, etc.) was most reliably associated with parental well-being, and remained so after controlling for child characteristics. Parents' access of service and professional support was not associated with parental well-being, but there was some evidence that it was related to their child's needs. Conclusions: The research emphasizes the significance of including multiple measures of social support in research with families of children with an intellectual disability. Furthermore, the possibility that parents, during their child's adolescence, may be especially vulnerable to the disruption of their informal support networks is an important practical consideration.
Descriptors: Social Support Groups, Family (Sociological Unit), Severe Mental Retardation, Depression (Psychology), Parents, Family Relationship, Coping, Well Being, Children, Individual Characteristics, Age Differences, Severity (of Disability), Adolescents, Comparative Analysis, Stress Variables, Anxiety, Life Satisfaction, Child Rearing, Correlation, Behavior Problems, Autism, Clinical Diagnosis, Family Influence, Access to Health Care
Blackwell Publishing. 350 Main Street, Malden, MA 02148. Tel: 800-835-6770; Tel: 781-388-8599; Fax: 781-388-8232; e-mail: firstname.lastname@example.org; Web site: http://www.blackwellpublishing.com/jnl_default.asp
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Authoring Institution: N/A