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ERIC Number: EJ831053
Record Type: Journal
Publication Date: 2007-Oct
Pages: 14
Abstractor: As Provided
Reference Count: 47
ISSN: ISSN-0968-7599
Experiences of Families with Relatives with Intellectual and Developmental Disabilities in a Consumer-Directed Support Program
Caldwell, Joe
Disability & Society, v22 n6 p549-562 Oct 2007
The current study explores the experiences of families with relatives with intellectual and developmental disabilities participating in a consumer-directed support program in the USA. The Illinois Home Based Support Services Program provides a limited budget to purchase and manage services. However, within recent years the program has faced cuts and changes. This context provided a rich environment to explore the benefits of the program, as well as oppressive forces creating barriers to the control of financial resources by individuals with disabilities and their families. Financial benefits, benefits from respite and personal assistance services and prevention of undesirable institutional placements were major themes that emerged and triangulated with previous research. The following themes emerged concerning barriers to the control of financial resources: provider and professional control, disability as a deserving group, fraud and abuse perceptions and familism. These themes appear to fit well within a social model of disability applied to the family.
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Publication Type: Journal Articles; Reports - Evaluative
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: Illinois