ERIC Number: EJ799329
Record Type: Journal
Publication Date: 2008-Jun
Abstractor: As Provided
Reference Count: 40
Diagnosis, Disclosure, and Having Autism: An Interpretative Phenomenological Analysis of the Perceptions of Young People with Autism
Huws, Jaci C.; Jones, Robert S. P.
Journal of Intellectual & Developmental Disability, v33 n2 p99-107 Jun 2008
Background: Although there is extensive research examining parental experiences of assessment and diagnosis of autism, there is a paucity of research from the perspective of individuals with autism. Method: Semi-structured interviews were conducted with nine young people with high functioning autism who were capable of providing a verbal account of their perceptions of autism and diagnosis experiences. Data were analysed using interpretative phenomenological analysis. Results: Diagnosis, and the disclosure of the diagnosis of autism, were embedded in respondents' perceptions of "having" autism. This superordinate theme included five themes: (i) "disclosure delay," (ii) "providing explanations," (iii) "potential effects of labelling," (iv) "disruptions and opportunities," and (v) "acceptance and avoidance." Conclusion: In relation to the existing literature, it is suggested that the effects of diagnosis, or disclosure of diagnosis, from the perspective of the person with autism be given greater consideration.
Descriptors: Autism, Late Adolescents, Young Adults, Experience, Attitudes, Clinical Diagnosis, Disclosure, Phenomenology, Labeling (of Persons), Attitudes toward Disabilities, Interviews
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Authoring Institution: N/A