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ERIC Number: EJ795474
Record Type: Journal
Publication Date: 2006
Pages: 26
Abstractor: Author
Reference Count: 54
ISBN: N/A
ISSN: N/A
Body Disfigurement and the Quality of Life of Adolescents with Pectus Excavatum: Effects of the Nuss Procedure
Roberts, Jillian; MacMath, Sheryl; English, Margot; Martin, Joan; Hayashi, Al; Sigalet, David L.
Physical Disabilities: Education and Related Services, v24 n2 p21-46 Spr 2006
This article takes a comprehensive look at the effects of pectus excavatum, a congenital deformity with psychosocial and physical ramifications, and the Nuss procedure on the quality of life of adolescents. The Nuss procedure is a minimally invasive corrective surgery. Twenty-five participants from Calgary, Alberta were interviewed (10 adolescents between the ages of 13 and 16, 8 mothers, and 7 fathers) regarding their experiences with pectus excavatum before, during recovery, and after surgery. We gathered qualitative data on four areas of quality of life: well-being, social belonging, satisfaction, and empowerment. Pectus excavatum had a negative effect on quality of life, with participants demonstrating decreased self-confidence, increased feelings of self-consciousness, and a variety of avoidance and concealment behaviors. After the Nuss procedure, all areas of adolescent quality of life improved. Adolescent and parent recommendations are provided. We also explore theoretical implications in relation to body disfigurement research, quality of life, and pectus excavatum. Finally, educational implications are included. (Contains 1 table and 1 figure.)
Division for Physical and Health Disabilities, Council for Exceptional Children. 1110 North Glebe Road Suite 300, Arlington, VA 22201. Tel: 888-232-7733; TTY: 866-915-5000; Fax: 703-264-9494; e-mail: barbara.kulik@csun.edu; Web site: http://www.cec.sped.org
Publication Type: Journal Articles; Reports - Evaluative
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: Canada (Calgary)