NotesFAQContact Us
Search Tips
Peer reviewed Peer reviewed
Direct linkDirect link
ERIC Number: EJ774564
Record Type: Journal
Publication Date: 2007-Sep
Pages: 18
Abstractor: Author
Reference Count: 48
ISSN: ISSN-1034-912X
Moving towards Midlife Care as Negotiated Family Business: Accounts of People with Intellectual Disabilities and Their Families "Just Getting along with Their Lives Together"
Knox, Marie; Bigby, Christine
International Journal of Disability, Development and Education, v54 n3 p287-304 Sep 2007
This study explores meanings of family care held by seven families that include a middle-aged adult with intellectually disability. In-depth interviews were conducted with members of each family--the person with intellectual disability, parents, siblings, and sibling spouses. Participants described care as simply getting on with their lives, as "Family Business", characterised by the conduct of well-understood tasks and routines. As such, all, including the person with intellectual disability, performed roles critical to the well-being of each other and the family as a whole. Family Business was underpinned by negotiated, albeit often implicit, rules that reflected family values and were amenable to changes in circumstances throughout the lifecycle. Future planning was perceived as a sensitive whole family issue. Interdependence among members was key to retaining family independence from formal services that were regarded as a "top up". Suggested is the importance of services adopting a relational approach to understanding family care and supporting future planning for middle-aged people with intellectual disabilities, rather than simply focusing on "older carers". (Contains 1 table.)
Routledge. Available from: Taylor & Francis, Ltd. 325 Chestnut Street Suite 800, Philadelphia, PA 19106. Tel: 800-354-1420; Fax: 215-625-2940; Web site:
Publication Type: Journal Articles; Reports - Research
Education Level: Adult Education
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: Australia