ERIC Number: EJ767805
Record Type: Journal
Publication Date: 2007-Aug
Pages: 12
Abstractor: Author
ISBN: N/A
ISSN: ISSN-0964-2633
EISSN: N/A
Available Date: N/A
Silenced Grief: Living with the Death of a Child with Intellectual Disabilities
Todd, S.
Journal of Intellectual Disability Research, v51 n8 p637-648 Aug 2007
Background: This paper examines the bereavement experiences of parents of people with intellectual disabilities (IDs). It is based upon an understanding that there exists little research-based understanding of those experiences or of the support needs of parents after the death of their child. Methods: In-depth interviews were held with 13 parents on the deaths of their children with IDs. Results: The data highlighted the deep sense of loss that these parents experience after the death of their child. The loss was intensely felt. They also show that their loss was a form of compounded loss. To begin with the scale and depth of loss is misrecognized. They also lose contact with a world that they had previously been heavily involved in. There was a sense that ID services and professionals withdrew from the family with too much haste. The data reveal that there exists no adequate supportive emotional community for these parents to express their grief. Conclusions: It is argued that the experiences of these parents have much in common with understandings of disenfranchised grief. The implications of these findings for research and practice are briefly discussed.
Descriptors: Grief, Death, Mental Retardation, Parents, Coping, Parent Attitudes, Social Support Groups
Blackwell Publishing. 350 Main Street, Malden, MA 02148. Tel: 800-835-6770; Tel: 781-388-8599; Fax: 781-388-8232; e-mail: customerservices@blackwellpublishing.com; Web site: http://www.blackwellpublishing.com/jnl_default.asp
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A
Author Affiliations: N/A

Peer reviewed
Direct link
